Would you be willing to share your story with me? How bad was your hypertrophy? Symptoms? LVOT gradient? How was the recovery? I think it would be helpful for me to hear other stories. I'm looking into where to have this done.

Absolutely, I'll share whatever you feel you need. Let's set up time to talk. How does Thur or Fri look? Feel free to private message me with your availability and contact information.

Hi Maysa, Here is how I was diagnosed http://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-the-flu-a-grocery-store-clinic-and-a-mayo-clinic-nurse-may-have-saved-my-life/ .

Following this, several months later I had the surgery. Here is what my physician and I had to say on the Mayo Clinic Radio Show a few months after the surgery. http://newsnetwork.mayoclinic.org/discussion/mayo-clinic-radio-hypertrophic-cardiomyopathysacroiliac-joint-painhot-tubs-and-health/

And then during recovery, here is what rehab was like for me http://newsnetwork.mayoclinic.org/discussion/cardiac-rehab-smart-for-healing-hearts/

Hope this helps a little more.

Thanks this is so helpful. Are you willing to share some of your health info? I understand HIPA rights and so if you don't feel comfortable I understand. I want to get a sense of where my numbers fit in respect to others who have had surgery.

This is what I know about mine:
I was diagnosed this past May 2016 with HCM. They took me off Lisinopril 20mg (for high blood pressure) and put me on Metoprolol 75mg. Only now I’m learning that Lisinopril and other ACE Inhibitors make HCM worse. Well, I’ve been on Lisinopril for 20 years. Even with the beta blockers though, I still have these symptoms: shortness of breath (SOB) and difficulty breathing, dizziness with foggy vision that tunnels in, weakness, fatigue, chest pains, palpitations, difficulty falling asleep or staying asleep, swelling in my hands at night. The symptoms are worse under exertion (lifting, walking, climbing stairs), laying down flat on any surface, or after eating. They have increased the dosage to now 200mg. They put me on exercise restriction: no lifting/pushing/pulling anything >/ 20 lbs, limit exercise to not exceed onset of symptoms.

It's a long history where I've been having symptoms on and off for perhaps 15 - 20 years and as a past marathon runner I just thought that I had some cardio-vascular fitness issues to improve. I've been on high-blood pressure medicine for this same length of time. Passed out running on the trail once but thought that it was just my blood pressure getting too low. We were living in Los Alamos at 7400' so I thought it was the altitude as well; apparently not. Moved to Tucson, where about five years ago, a nurse pathologist at a CVS Minute Clinic thought she heard a murmur. When I went to my regular Family Medicine doc, he didn't hear a thing. So, again nothing was done about my shortness of breath. Went on a rigid diet, lost 20lbs and it improved. Well, I just moved to Albuquerque last year and after a bout of walking pneumonia, I went to see a new Family Medicine doc and that's when they heard a heart murmur (again) and sent me immediately to the heart hospital which led to a long battery of tests from May until this past December 5, 2016 covering an Echo/Doppler Echo, multiple EKGs, Cardiac MRI, a month long halter monitor, a Echo Stress Test - all of these (re)confirming the diagnosis of HCM.

Echo Stress Test Results:
Rest 118/78 (91) LVOT obstruction gradient 76 mmHg
Stress 162/74 (103) -
Post Stress 126/74 (91) LVOT obstruction gradient 142 mmHg

Maximal heart rate during stress: 151 bpm (92% Max Predicted Heart Rate)
Predicted max heart rate: 164 bpm
Target heart rate was achieved, response to stress was normal with stress-induced chest pain when exercised for 9 minutes, protocol stage 3and a max work rate of 10.1 mets. Exercise terminated due to dyspnea and fatique. Functional capacity was decreased for age.
Impressions: Asymmetric septal hypertrophy

Transthoracic Echocardiography Results:
Overall left ventricular systolic function was hyperdynamic. Estimated ejection fraction was 70%. There was moderate asymmetric hypertrophy of the septum, with an appearance of eccentric hypertrophy, consistent with hypertrophic cardiomyopathy. There was dynamic obstruction during Valsalva in the outflow tract with a peak gradient of 91 mm/Hg. Abnormal relaxation with normal filling pressures. Left atrium was mildly dilated. No stenosis.

Cardiac MRI Results:
Significantly thickened basal septum measuring 19 – 22 mm at the inferior basal and anterior basal septum (7:00 and 11:00) at the end of diastole on short axis view is concerning for asymmetrical hypertrophic cardiomyopathy, septal type. No myocardial scar or fibrosis. Hyperdynamic left ventricle with ejection fraction of 80%. Moderate mitral regurgitation and left atrial enlargement measuring 54 mm in maximal transverse dimension and 28 sq cm in maximal cross-sectional area at the end of systole.

Hi Maysa, I'm OK sharing things but something very important to mention. When I met with the physicians, they said very simply, it's a matter of how you feel and that's the main barometer. I too had run marathon's and when I couldn't walk just one house away or up a few stairs, I knew I was having problems. Please connect with me via a private message over this forum and let's talk. Thanks