Incidental find 7mmx6mm partly calcified meningioma
Good morning, my first post here. Currently have a meningioma on my left temporal lobe/ sphenoid wing. It was an incidental find while having my pituitary gland scanned due to adrenal insufficiency. I have eye pain, headaches and the left side of my face has dropped slightly. Also suffering from memory loss and depression, could it be this tumour?? I was referred to a neurologist and I received a letter saying he doesn’t deal with meningiomas and would need to see a neurosurgeon. He said anyway, it’s partly calcified so shouldn’t be causing any headaches, well it is!! Should I see someone about this??
Thank you in advance 😊
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Hello Colleen, I have now been referred to a neurosurgeon and the wait time is 16 weeks, that’s for urgent cases. Still have eye pain and headache. The first neurologist he referred me to looked at the scan and I enclosed his take on it.
Regards Michelle 😊
Thank you for your letter referring this lady because of a meningioma. A meningioma is not dealt with by the Neurology Services and it is very unlikely that the small meningioma that she has which is largely calcified suggesting it is very old is causing her headaches. Headaches are not generally due to lesions like this and her headaches can be managed by the GP according to the Manchester Headache Pathway.
Given that she has no other significant cause for her headaches on imaging and there is no further information about the nature of the headaches I don't think we need to trouble her with a neurology clinic appointment. If you wish for advice about the meningioma I suggest you refer to neurosurgery as they deal with meningiomas.
I had a 6mm partially calcified frontal Meningioma taken care of last March. I had the Gamma Knife procedure done at U of P. I walked in the hospital at 6:30 am and walked out at 3:30 pm. No recovery was needed, no pain or complications. Good luck. Make sure that you have an exceptional doctor and hospital. Good luck.
Hi, I am pleased you are feeling good and it went well. I am about 5 weeks away from my first appointment but still being reassured that this 6mmx7mm meningioma is not touching any vessels etc. I still have eye pain and have been referred to an ophthalmologist for further investigation. I am sure I will feel better when an actual neurosurgeon sees me and he tells me there is nothing to worry about. I hope you stay well.
Kind regards
Michelle 😁
Update on meningioma.
I saw a neurosurgeon a couple of months ago and he was so nice.
He said there is absolutely nothing to worry about. He showed me the tumour and said it’s not near any of the brain structure and would not be causing any symptoms. I was relieved. He said I have probably had it quite a few years. It’s partly calcified and only 7mm. Have to have a scan in 12 months. So relieved and my headaches were linked to me needing new glasses as my prescription had changed, everything good now.
My NS said mine has probably grown over 10 years but since a year and a half ago it has grown another 1mm. He said typically they grow one to two mm per year. Mine is also intracranial and not touching the brain yet. He said I can do nothing and it will continue to grow until I start having problems or have gamma ray to stop growth and hopefully shrink it. I opted for the gamma ray. I pray to God it works and it doesn’t grow anymore. God Bless you on your journey. Hopefully yours won’t grow anymore further
Hello. I also discovered I had a Meningioma about 3 years ago by accident). Apparently it showed up in X-rays back in 2006 and I was never told about it! Anyway, when it reach 6mm I had Gamma Knife. Everything went smoothly. It was quite an experience. It’s amazing walking into the hospital at 6am and walking out at 3:30pm. I had the procedure at University of Pennsylvania. They were amazing. I had the same nurse by my side the whole time. The only thing that was an ick factor, was having a halo screwed into my head to make sure that my head didn’t move during the procedure. I was under anesthesia so I didn’t feel a thing. They took if off before I left. No problem. My surgeon told me the Gamma Knife should keep the tumor from growing, and hopefully it will shrivel as time goes by. Good luck. I have a check up at my 1-1/2 year mark. Good luck.
badgieboo66: So glad to hear the good news after your first post 4 months ago. I'm sure that 4 month wait to get a definitive answer from the neurosurgeon was stressful. So happy for you.
dlc1953: I've read a few posts about your experience with gamma knife. Very helpful for me as I have 2 meningiomas that the neurosurgeon said he would use gamma knife to stop growth if they get to the point where he thinks they are causing a problem. You make it sound like the experience with gamma knife isn't so bad. So, thank you for posting.
Hello all, I went through the gamma knife procedure in February, a month and a half after completion the surgery/radiation/chemotherapy. I was not interested in wearing the optune contraption 18 hrs. per day for "life" so I opted for the one-time gamma knife procedure. The gamma procedure was not bad. Thank you all for your information.