Gastroparesis and lactobacillus probiotic

I am going to try the domperadine and am waiting for the orders from the nurse practioner I just had a consult with him with ti send the orders for an EKG for my Grandson so we can have the DR. Order his domperadine. He would rather try that niw then have the gastric implant right now as the DR. Started to put in temporary one and he had been getting sick previously and then started again as wires were being put in his nose and tubes down his throat. He also hit a bloody nose. It was such a terrible day for him he would rather try the medicine first before doing that. Thank you so very much again! 🙏💜🙏😘

Hello everyone!
I just wanted anyone to know that a drug given intramuscular in the ER called Zyprexa there is the generic brand if you look at this name , and it helped him stop forcefully vomiting for many hiurs in the ER. I just wanted to mention this in case anyone is suffering from severe vomiting and needs something that might help them. He was given compazine so many times but it wasn’t working anymore, so ZYorexa was given after the compazine, and it did stop his suffering within about an hour and a half after that. The generic is called oladapine or something like that lol but it will show you the generic if yiu type in Zyprexa I know I’m spelling the generic wrong but just wanted to share this information in case anyone might find it useful. Sending. Love and prayers 🙏💜

Can anyone at the Mayo Clinic tell me please who I should see if I were able to take my Grandson to the Mayo Clinic.Is the Mayo Clinic in MN the best one to go to fir Gastroparesis and since he’s had 2 other surgeries . The first 2 the Nissen fundoplicatiin and pyloroplasty freeing him if the vomiting he experienced evey night when he went to sleep at aga y. This surgery worked for many years without any vomiting his food at night at all. Second revision on Nissen fundoplicatiin worked fir 4 years without severe vomiting again. His third surgery at age 22 in Aaugust when they did a. 270 degree Nissen fundoplicatiin, a half wrap did nit stop his symotoms at all and he has been getting progressively worse since that operation. His first. 2 surgeries they did a 360 full wrap Nissen fundoplicatiin. A gastric emptying study was nit done before his last suregery a gastric emptying study was nit done at all until after his surgery failed and he was getting worse. That’s when we were referred to a gastric motility DR. I would like to know if there is more than one entity going in with him . I now know he has severe GP from his gastric emptying study, but would like to know if this wrap could also be causing problems and if anything else should be or could be done to help in reference to the wrap. If anyone could help me from the Mayo Clinic in reference to my question or anyone also with any advice I would be for we grateful for your advice Thank you from the bottom of my 💜 .
I think I would like to see someone that is beey experienced in Nissen fundoplication wraps that has done many revisions in these wraps and knows if there is still a problem going in with the half weao this surgeon did. The last 360 full wraps made him totally better gir manybyears. I dint know what cause the gastroperesis and would just like to know what is going on with him as none has ever seen someone vomit from his guts(excuse my French) the way that he is. It’s so and the force from his guts they haven’t seen anything like it. When he waited so long in a pediatric ER here in NJ for hours before they gave him anything, he filled 3 bags of blood . It’s a brand new Hosoital here with only one pediatric Dr in fir literally 1000 kids. What ashame. It has actually been inhumane . So unfair to the kids and who are suffering and it’s nit fair to Dr ir the 2 poor nurses in. They advertise their brand new hospital with all private rooms and 89 inch tv screens but no help in the ER there at all. It’s so very heartbreaking.
Thank you 🙏 to anyone that read my post and cry fir help .🙏💜💚❤️😘

PS I meant to write his first operation was at age 7. He is now 23 years old. Thank yiu so very much again! 💕

Hi, @sprinkles123 - I can hear in your words how much you care about your grandson and that his condition really hurts for you.

While members here can share their experiences or those of people they care about, we are not medical professionals.

If you would like to get a second opinion at Mayo Clinic, here is the contact information http://mayocl.in/1mtmR63.

There is no true definitive conclusive test for gastroparesis. A nuclear stomach Emptying test is actually much more effective in showing the signs of gastroparesis. There are a few ways to develop this, the mail one being on opioids for longer durations. Reglan can be effective but I agreed it has some side effects. However, if the rewards are greater with reglan it can be worth the possible side effects. Are you taking any rx prn digestive enzymes like creon or zenpep, if lipase numbers are low.?

I do not have gastroparesis. My daughter has it. After multiple trips to ER after vomiting stale stomach contents, she was tested with stomach emptying procedure which confirmed her stomach would not empty on its own. This followed a severe virus and chronic fatigue diagnosis. It may be that a med given to her for chronic fatigue led to damage of vagus nerve which controls stomach emptying. I am surprised you say there is no true definitive diagnosis for gastroparesis. It seems the stomach emptying is pretty definitive. Tardive dyskenisia is a serious side effect of Reglan. I am also not familiar with the enzymes you mention. Are they prescribed by a GI doc? Do they help?

The digestive enzymes I'm suggesting are only rx. Here's my backstory so you can see I've been through this all for almost 10 years.

Here is just a bit of my journey and uphill I was facing, until I had the transplant and have all the possible complications and than some. So now unfortunately, am on borrowed time.

It's too much info to explain every event, but I'll try to give a brief synopsis. It all started July 27th 2016. I couldn't sleep at all and was in SERIOUS pain. Ended up having to go to hospital in the early morning hours bc it didn't subside at all. I was admitted and within 18 hours, I was in ICU, on life support, and in a medically induced coma. Doctors were literally betting how long I would stay alive before I passed (This part wasn't a joke, they seriously wore my wife said).

Made it through that and then spent the next 4 years living in hospitals from NJ, to PA, and Columbia. I eventually got a transplant at Columbia for an islet Cell Transplant. They also removed my entire spleen, pancreas, gallbladder, duodenum, 60% of my stomach, and had a wedge section.

Had 8 different feeding tubes, in and out of hospitals, multiple picc lines for tpn, fluids, infusions, coding twice on the OR table and had to be revived. Been on a vent 2 more times after my first time while in the coma. I'm now a brittle diabetic bc of not having a pancreas at all. Further, I can't get an actual pancreas put back in and have them completely rearrange all my internal "plumbing" again, to make everything work again as it would for every other human. I have been on the pancreas transplant list, but as "inactive" due to my respiratory issues (respiratory system failed twice) and mainly due to the 24/7 vomiting on an every day basis. Each day I vomit a minimum of 10 times, and up to over 25 times daily. So, I will not be able to keep the mandatory daily immune suppressants down for a foreign pancreas. I also am a rare match, and the wait is approx 2 years at the fastest.

My now brittle diabetes, lupas, and autoimmune issues are attacking my organs at an unbelievably fast pace. My doctors are saying my body won't make it (My endo said verbatim, "We're very sorry to have to say this, but you are already past the point of no return"), a side note, who the hell words that kind of information/message!?!? My wife and I were like what in the world?

So, I'm already pretty much a person with very limited mobility, malnourished bc I have been throwing up for the last 18 months, and no one can find out why. So in the event I get a miracle and find a pancreas match, I still can't get it bc I throw up everything and won't be able to get my immunosuppressants down for the foreign pancreas.

I've also just got another rt shoulder mri that shows more labrum tears from anterior around to posterior, and bone on bone requiring a full shoulder replacement now (already have had 4 surgeries on this right shoulder) before all this pancreas, etc. happen when I was fighting. Had an acl done for 2nd time. It's now torn again, along with lcl, mcl, and lateral meniscus. I have 7 herniations in my thoracic spine, 3 in my cervical, 1 in my lumbar, need another ankle surgery, a hip replacement, and am going on Wednesday to see how we are going to handle this next shoulder surgery.

There's more, but that should be enough to give you an idea of where I was for the last 9 year's, and what I am still currently managing. We have been talking about my end of life and I'm trying to get everything in line for my cremation, all my finances, belongings, etc. I just don't know how to keep waking up and fight an endless battle that no doctor has an answers on how to help my post surgery complications.

I am very sorry- you have had much more than any one person should have to deal with.

Thank you so much for your very kind words and very helpful advice and for sending me the link to contact the Mayo Clinic. I would like very much to be able to take him there now.