Have MGUS and just caught Covid: Did Covid affect your numbers?

Posted by amyboylan1 @amyboylan1, Jun 8 4:54pm

I was just diagnosed with Covid and was diagnosed with MGUS about a year ago. I am wondering if anyone has had Covid with MGUS and how Covid affected your numbers if it did. I appreciate anyone who can respond I am scared.
Thanks, Amy

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Thanks. Can I ask how long you’ve had MGUS and if you know if your supplement is helping.

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@amyboylan1

Thanks. Can I ask how long you’ve had MGUS and if you know if your supplement is helping.

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I was diagnosed in March 2023 when I mentioned in an annual appointment that I was having some numbness in one of my feet. A med student was assisting the doctor and ran every blood test imaginable! And MGUS showed up. After 6 months on circumin my Mspike actually disappeared but my doctor was firm in saying that it was not gone forever and that it would always go up (and hopefully) down over time. SIx months later (on my blood draw last month) the M spike was back where it had been a year ago but the doctor was not surprised or concerned. Hard to know if it would have been higher without the circumin so I am going to stay on it!

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@scalm

From everything that I have learned, there really isn't anything to do that will absolutely slow progression. The only thing that I decided to try was circumin, which I have read on this site (and others) shows some positive results in SOME people. I am cautious about mega-dosing anything new and checked in with my hematologist before even starting on a low dose. She didn't see a problem with doing that. I can't say whether or not it is helping, but I tolerate a low dose well and figure it can't hurt! (I take Integrative Therapeutics Theracumin HP 600 mg daily. I am considering upping the dose to 900 mg daily.) And you are not alone in your anxiety! This diagnosis was shocking and frightening to me. But I am trying to not have it be the focus of my life and remind myself that "nothing bad is happening". When and if it progresses I will have to deal with it but right now I trust my doctor and she is very reassuring.

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@scalm
I agree that conferring with your hem/onc physician before trying any OTC supplement is important. I did this before adding 1000 mg Curcumin x2 daily to my regimen. I also took my list of prescribed medications in for a consultation with the pharmD connected to my PCP’s clinic. You want to be sure there are no unintended consequences.
Having taken these precautions I jumped in. I’m happy to report that my lab results have been quite stable and since I began the curcumin over a year ago, the slow, steady increased values I was seeing have actually gone down and are now at the same levels they were when I was diagnosed. Yay!
I recently had a major surgery for hip replacement and I’m interested in how this may impact my numbers.
I’ve had Covid twice, both contracted while traveling. I was not as careful as I should have been about masking up in public. After working in a Children’s Hospital and building up pretty much superhuman immunities to all the kiddo germs for so many years, and then surviving a global epidemic, I have to remind myself that I am now a bit vulnerable. We shouldn’t live in fear, but we should not embrace folly.
I’m going again for my six month follow up in a couple of weeks… I will certainly share those results when I get them.
Regarding that curcumin dosage, what indicators will you look for to decide on a dosage that is therapeutic for you?

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Hi Patty. So happy to hear about your numbers! After researching brands and finding one that was highly rated as being bio-available I basically started with the dosage recommended by the maker, which was 600 mg. I had read that research studies were using a much higher dosage but I often have digestive issues when I start on new supplements or meds. I am guessing you are tolerating the 2000 mg/day well! Your story is inspiring me to slowly up my dosage!

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