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Post Liver Transplant Recovery: Recipient just doesn't feel well
Transplants | Last Active: 1 day ago | Replies (19)Comment receiving replies
Wow ten years! How do you feel? How hard was the transplant journey,?I'm currently waiting and I keep going back and forth on if I can go through with it or not. I feel like I won't be the same or will ever be the same . I cry every night and jump when the phone rings with the fear if they have found one or not because I'm afraid of the aftermath.i have searched for survivors someone to talk to.. I just found this group a few days ago at 4 s.m because I couldn't sleep . Please tell me your journey. If you will . I'm looking for hope .help on my decision ygo through with it . I'm 46 been waiting 9 years my meld score is 8 but they called the other day with a liver and I missed the call! I'm currently waiting to see if they will reinlist me but I'm still so nervous.
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@nancyraine, my wife got the call January 9th of this year, after a very short wait. So she didn't experience the difficult waiting period that you have. She has NET, and after chemo, surgery, PRRT, and Lanreotide/Octretide injections, our team recommended the liver transplant plan as our best course of extending her life as long as we can. After 2 different second opinions, she decided to take the plunge on getting a transplant. Keep in mind every transplant is different, some go smoothly, but ours has been anything but, but you have to keep in mind, it is a long recovery as I have learned from our doctors/team and research I have found. There is months 0-3 months, 4-6 months, and so forth. She only had NET's left in her liver, so we choosed to give her the longest possible life with the transplant. We will get through it, you will also. We got this and you will too!