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Have MGUS and just caught Covid: Did Covid affect your numbers?
Blood Cancers & Disorders | Last Active: Oct 17 11:50am | Replies (33)Comment receiving replies
From everything that I have learned, there really isn't anything to do that will absolutely slow progression. The only thing that I decided to try was circumin, which I have read on this site (and others) shows some positive results in SOME people. I am cautious about mega-dosing anything new and checked in with my hematologist before even starting on a low dose. She didn't see a problem with doing that. I can't say whether or not it is helping, but I tolerate a low dose well and figure it can't hurt! (I take Integrative Therapeutics Theracumin HP 600 mg daily. I am considering upping the dose to 900 mg daily.) And you are not alone in your anxiety! This diagnosis was shocking and frightening to me. But I am trying to not have it be the focus of my life and remind myself that "nothing bad is happening". When and if it progresses I will have to deal with it but right now I trust my doctor and she is very reassuring.
Replies to "From everything that I have learned, there really isn't anything to do that will absolutely slow..."
@scalm I am on 2000 mg of Qunol Curcumin daily. Before I started, I checked with my oncologist, my PCP, who then referred me to their clinic staff pharmacologist and got approval from all of those people before starting the supplement. I have had success in lowering my numbers or at least keeping them stable. I’ve been doing this for a couple of years now.
There’s a lot to consider including other medications, coexisting conditions, and overall health before you start adding supplements.
I agree with you that there is probably very little one can do to forstall progression if the disease is determined.
I was diagnosed several years ago now and my anxiety is largely abated. When I do get anxious, I remind myself that the right of progression for MGUS is very slow. I am likely at 73, to succumb to something else.
Are you having any other symptoms that you could attribute to your MGUS?
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@scalm
I agree that conferring with your hem/onc physician before trying any OTC supplement is important. I did this before adding 1000 mg Curcumin x2 daily to my regimen. I also took my list of prescribed medications in for a consultation with the pharmD connected to my PCP’s clinic. You want to be sure there are no unintended consequences.
Having taken these precautions I jumped in. I’m happy to report that my lab results have been quite stable and since I began the curcumin over a year ago, the slow, steady increased values I was seeing have actually gone down and are now at the same levels they were when I was diagnosed. Yay!
I recently had a major surgery for hip replacement and I’m interested in how this may impact my numbers.
I’ve had Covid twice, both contracted while traveling. I was not as careful as I should have been about masking up in public. After working in a Children’s Hospital and building up pretty much superhuman immunities to all the kiddo germs for so many years, and then surviving a global epidemic, I have to remind myself that I am now a bit vulnerable. We shouldn’t live in fear, but we should not embrace folly.
I’m going again for my six month follow up in a couple of weeks… I will certainly share those results when I get them.
Regarding that curcumin dosage, what indicators will you look for to decide on a dosage that is therapeutic for you?