In regard to lab results

Posted by baps6194 @baps6194, 2 days ago

Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work done to clear me for my upcoming bariatric surgery. He did the first set of labs two weeks ago, everything looked fine to me in my patient portal. But then he had his nurse call me a week after the first set of labs to tell me go get more blood work done immediately. When I looked up the names of the labs he wanted me to get they were all related to blood cancer. Finally the second set of labs came back, I researched all of the medical terms of the test one showed my white blood count was abnormal, my lymphocytes were low, and the M spike test showed it was high with a number of 0.9. Now when I researched the M Spike everything pointed to the MGUS and Multiple Myeloma. From my research it said that the M Spike is supposed to be 0 and if there were any number shown it could mean I have myeloma cancer cells in the blood. I’m not looking for a diagnosis but I want to know if anyone has been through this process and what was your experience. I follow up with my hematologist again on June 25th. I’m starting to wonder if all of this body pain I’ve been going through for two decades may have to do with some type of blood cancer. The doctors always thought it was from early signs of arthritis which I was diagnosed with in 2013 in both knees. But I’ve been dealing with bone and muscle pain since I was in my early 30’s. Now at 52 years old that pain has increased over the years. What’s y’all thoughts on this?

My name is Shawn

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Hold your info and thoughts to yourself for now and see if the docs "rule it out" (consider it) on their own. You may have the right conclusion, but you don't want to step out of your patient's role.
Instead of making a dx and being wrong, they will use "rule it out," which means they are pretty sure it's that , but don't want to jump in with both feet.

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Also, I was so very sure I had a horrible reaction to chemo. It was e. coli food poisoning 😫.

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@shmerdloff

Hold your info and thoughts to yourself for now and see if the docs "rule it out" (consider it) on their own. You may have the right conclusion, but you don't want to step out of your patient's role.
Instead of making a dx and being wrong, they will use "rule it out," which means they are pretty sure it's that , but don't want to jump in with both feet.

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I did more research and found that Lupus could also cause a high M Spike. In a study that I found some patients didn’t have myeloma they tested positive for lupus. I guess I’ll see what the hematologist says on the 25th, he may want to do more testing.

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Anemic, random dizzy spells & tired!! for an about 1.5 years. PCP was watching numbers then sent me to a hematologist. I chalked it up to working and too much caffeine.

Diagnosed MM Jan '25 no bone/body pain. 🙏🏻

I'd call the hematologist to have them explain your bloodwork fully to you.

Sending good vibes... one day at a time.

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@treehouse5437

Anemic, random dizzy spells & tired!! for an about 1.5 years. PCP was watching numbers then sent me to a hematologist. I chalked it up to working and too much caffeine.

Diagnosed MM Jan '25 no bone/body pain. 🙏🏻

I'd call the hematologist to have them explain your bloodwork fully to you.

Sending good vibes... one day at a time.

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I see him on the 25 of June. I’ve had him as my hematologist for awhile because I have a rare blood disease. I’m just glad I already had him available because I don’t have to look for an oncologist. When I was in my early 20’s they thought I had rheumatoid arthritis but I didn’t.

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See sample attached LLS . Good discussion of lab results and protocols with providers..

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@shmerdloff

See sample attached LLS . Good discussion of lab results and protocols with providers..

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Sample

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