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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 6 1:52pm | Replies (429)
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I have IPF as well from Ankylosing Spondylitis. It's attacked my entire body with spinal fusion from C2 to T3 and L1 to S1. My thoracic is fused ( bamboo) so basically entire spine fused. Now my rib cage and lungs are being attacked. On oxygen because saturation level is always 82 to 85 when I do any physical activity. This only started about 3 months ago. Any suggestions are welcome

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Replies to "I have IPF as well from Ankylosing Spondylitis. It's attacked my entire body with spinal fusion..."
vic83 | @vic83 | Jun 28 7:13pm

I know the situation of having more than one bad thing and how it complicates treatment.
Do you know the Pulmonary Fibrosis Foundation?
https://www.pulmonaryfibrosis.org/
The site offers lots of information and one can find a support group through them. I found one and they do zoom calls and have speakers.

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