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Persistent elevation of absolute immature granulocytes 7 months 0.04
Blood Cancers & Disorders | Last Active: Jun 16 4:25am | Replies (18)Comment receiving replies
Thank you!
My latest CBC-DIFF showed normal but I will be doing a second check on this soon to be certain on that. Cardiology wise....found one and went in last week where he totally gaslit me the entire appointment. Told me my symptoms weren't cardiac related. 2 sentences later he asked me what my symptoms were (he didn't even know!) and when I went to tell him (intermittent shortness of breath, fainting, dizziness, lightheadedness, fatigue, nausea and cold sweats) I only got to the first 3 and he cut me off and said no, not cardiac related. Never asked me about earlier medical testing, family history, nothing. He said my persistent T wave inversions (over 8 months) in V1 and V2 (and now biphasic T Waves in V3 forming) with low voltage in limb leads are nothing unusual. Sure, if they were always inverted on the 2 MIGHT be normal variant for a young person (I am 61 and mostly sedentary but not obese) but new Biphasic waves too? Much less likely. I was so angry and upset that I was in tears on the way home. Now, the last couple weeks I have noted that every time I stretch out (leaning back on sofa with legs outstretched (only when very relaxed) or when waking my Blood Oxygen Sat drops very low. Typically drops between 88%-71%. I notified them on the 9th June. The nurse got back with me and asked (thru patient portal) if there was dizziness or shortness of breath when this happened, no. I then let them know that the latest drop was down to 64%. Then nothing till Friday, June 13. The nurse had him call me and he basically told me to sleep propped on pillows and set alarm clock every hour or 2 and sit upright till it gets normalized then I can go back to sleep. He said if it doesn't come right back up in a few minutes to go to ER (did that already on May 23 but, since it only happens when relaxed or during sleep (neither of which is possible in an ER setting) and I wasn't in the middle of a heart attack at that moment they just sent me home. So, he said "See you Thursday". and that was that. Talked to my insurance company and they aren't too pleased. They set me up for their 2nd Opinion option and they are supposed to call me Monday to go over all my history, etc and will pull my records and assess the case. They told me I need no referral and to set up an appointment Monday for a Cardiologist at another network that takes their coverage and see what mine says Wednesday and if he isn't being proactive with my case then to kick him to the curb. They also told me to change my PCP to one at another clinic network. We shall see where it goes next. Been Prodromal for Cardiac since mid January so clock is ticking and the wheels of the healthcare system move very slowly.
Replies to "Thank you! My latest CBC-DIFF showed normal but I will be doing a second check on..."
@lightgoddess thank you so much for your kind words and prayers deeply appreciate them deeply appreciate you!
My heart goes out to you! The medical profession and a lot of physicians (using that word lightly anymore) seem to need a person's symptoms to match pretty close to 100% of a known disorder or disease for them to diagnose and treat. Lazy and unqualified people supposedly taking "care" of us.
My deepest prayers and thoughts are with you, don't give up you deserve to be taken care of and treated both medically and as a valued human being with compassion and to be not just heard but listened to, not cut off dismissed or slighted. I cry with you I know from my own experiences how you feel, it's not right that we have to fight and suffer such in justice. But whatever you do don't give in or give up! I have a new pcp and he is so wonderful compassionate and quick on getting me into an oncologist. I told him straight up that I need him to listen to me and to not dismiss me or my symptoms and above all be straight up honest with me no matter what. Other wise I will not respect
him. He agreed and has lived up to that agreement. I make sure I thank him for doing so every time. I even went to him when I wasn't sure about the oncologist, he listened and told me he felt this oncologist will fight for me to do all he can for me. So having that strong patient doctor bond is helping me to give other medical professionals a chance. Mind you a chance not multiple chances. We are hoping for at least a remission there will not be a cure especially with the pancreas being involved...the remission maybe short. But if I can get at least a couple more years to share with my now 12 year old g-son who has autism I will be grateful...sorry I did get off topic.
I just hate to know another human being (you) are having to go through so much emotional trauma and fight just to be heard. You might consider reporting these drs about their conduct towards you and how it has effected you. I am regarding mine.
I send my love and prayers to you as well!
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Good morning, @lightgoddess. My goodness, you’ve sure been through the wringer with this ongoing health issue since January! You’re right, the wheels of healthcare can move very slowly… been there myself. It’s incredibly frustrating and anxiety inducing! When you know something isn’t right and you feel there’s potential heart related issue, time is of the essence. I’m so sorry you’re not being heard!
Some positive news though is that your lab results came back in normal range, showing a reduction in the inflammation. But that still doesn’t answer what’s causing the dramatic drop in your blood oxygen level and other symptoms.
I’m encouraged for you that your insurance company is going to bat for you! That’s fantastic. For all the negatives we generally hear about some of the insurance companies it’s refreshing to hear that they have your back on this and nudging you to another clinic. I think that’s a good idea.
You initially joined Connect with the discussion in Blood Cancers & Conditions because of your elevated Ig numbers. Heart related issues are out of my area of experience so I feel you might might get more feedback from members sharing similar symptoms in the Heart & Blood Health support group.
Click on the link I’m providing below. If you’d like, you may start a new conversation or peruse the discussions to see if there’s one you want to join. Feel free to pop in anywhere! https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/
Since you’re going to be starting life fresh with a new cardiologist and PCP, I found a helpful discussion in Connect about:
Your Tips on How to Get Off to the Best Start with a New Specialist
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
I sure hope you have a much better experience with your new health care team! Will you let me know what you find out please?