Persistent elevation of absolute immature granulocytes 7 months 0.04

No, They have done no tests whatsoever pertaining to inflammation at any time in the last 15 years though in 2012 I did test elevated for C-reactive proteins on cardiac assessment test. They have done no testing or even discussed the abnormal IG test results when I inquired....just said "of no concern" and that was that. End of subject as far as the PAC was concerned.

I have not yet seen a cardiologist. Appointment is with the Primary care PAC (since Dr is on her Vacation still till August) told me a couple weeks back that it would take at LEAST 3 months before I could get referral thru to see a Cardiologist. The next few appointments only with the PAC. She is the one that dismissed the abnormal blood tests with the elevated IGs when I asked about them too. Frankly, they seem under-concerned about either potential issue. This last one with the blood tests I just found out about by accident, though they have been in my records since October 2024. Who knows how long they will put me off on seeing a hematologist since they dismissed the results out of hand. I doubt she even took any possible overlap on symptoms between the two (and other symptoms like 65 lbs weight loss in months following leg break/recover that they haven't really discussed....maybe partly from better diet but 65lbs weight loss between October-January is still pretty high) under consideration before she dismissed these abnormal test results as nothing concerning.

No, They have done no tests whatsoever pertaining to inflammation at any time in the last 15 years though in 2012 I did test elevated for C-reactive proteins on cardiac assessment test. They have done no testing or even discussed the abnormal IG test results when I inquired....just said "of no concern" and that was that. End of subject as far as the PAC was concerned.

I have not yet seen a cardiologist. Appointment is with the Primary care PAC (since Dr is on her Vacation still till August) told me a couple weeks back that it would take at LEAST 3 months before I could get referral thru to see a Cardiologist. The next few appointments only with the PAC. She is the one that dismissed the abnormal blood tests with the elevated IGs when I asked about them too. Frankly, they seem under-concerned about either potential issue. This last one with the blood tests I just found out about by accident, though they have been in my records since October 2024. Who knows how long they will put me off on seeing a hematologist since they dismissed the results out of hand. I doubt she even took any possible overlap on symptoms between the two (and other symptoms like 65 lbs weight loss in months following leg break/recover that they haven't really discussed....maybe partly from better diet but 65lbs weight loss between October-January is still pretty high) under consideration before she dismissed these abnormal test results as nothing concerning.

I am new here, I hope I am not out of step. I hope you have by now received a 2nd opinion or pcp decided to run tests.

I received the exact blood tests results one at the end of 2022 and another at the end of summer 2024. I had a lot of symptoms my then pcp disregarded my symptoms and would not even address the unusual blood results.

Two months ago I was diagnosed with cancer, which has metastasis into my liver pancreaticobiliary and lymph nodes.

I trusted my pcp, even when my gut was telling me I wasn't alright, there was something very wrong with me.

What I suggest if you hadn't already, is to get a second opinion asap. Be right up front telling them you are specifically wanting them to address the abnormal blood test results with you. You deserve the time and dedication of your health and your concerns to be addressed and taken seriously. Your health is essential there's only one you...don't allow the "professionals" make you feel or think you and your questions aren't important. No, you stand up strong and firmly request to be heard.

I truly hope all this matter is behind you now, and that you are doing well.

@lightgoddess! I totally misinterpreted what I read in an early post about visiting a cardiologist. I thought you’d already gone through the waiting period and that you’d finally be seeing a PA from that office…my apologies.

So, what I’d suggest when visiting your PA-C for primary care, is to be polite but assertive in telling them that you want/need a cardiac referral. Let them know that you’re concerned with ongoing symptoms! Those symptoms, combined with an extensive familial history of heart conditions, are cause for concern and delaying isn’t getting you the answers.
In no way should they make the decision to keep you waiting for a referral!

Another option: When you’re having the dizziness, racing heart or fainting episodes, get to an ED. You’ll get checked out in a hurry for heart issues and often a referral for a cardiac consult. You still may be instructed to check in with your PCP but that you should have a Cardi-consult.

Keep notes, either in a little journal or your phone about your symptoms and what you’d like to say to the provider.
You can also tell them that you’d like some labs run to help assess the level of inflammation present in your system and maybe find the underlying cause. That you’re concerned about the continued higher IG reading which can suggest elevated inflammation.

And now that you mentioned the 65 pound, unintentional weight loss, that should also warrant attention. You might request orders for a CBC with differential and a metabolic panel. These are standard labs but give a provider more detailed information of the blood, along with liver and kidney functions. Have you had your thyroid checked?

None of these are over-the-top requests and it shouldn’t matter anyway! You have a right to be an advocate for your health. You know your body better than anyone. When something is ‘off’, you know it and should trust your gut.

Your doctor should be working for you and taking your concerns seriously. If not, then it may be time to change providers. I know you said your insurance may not allow for a change of clinics but you may have the option of another doctor in the same clinic. I just did a similar switch. After 3 years with my PCP, we were still not on the same page. He was prickly, dismissive, and wasn’t able to be a team player with my oncology partners. So I changed to another provider. She’s fantastic and works collaboratively with my transplant team and local hematologist oncologists.

You have a right to be heard. Do you have the option of switching a PCP?

Thank you!

My latest CBC-DIFF showed normal but I will be doing a second check on this soon to be certain on that. Cardiology wise....found one and went in last week where he totally gaslit me the entire appointment. Told me my symptoms weren't cardiac related. 2 sentences later he asked me what my symptoms were (he didn't even know!) and when I went to tell him (intermittent shortness of breath, fainting, dizziness, lightheadedness, fatigue, nausea and cold sweats) I only got to the first 3 and he cut me off and said no, not cardiac related. Never asked me about earlier medical testing, family history, nothing. He said my persistent T wave inversions (over 8 months) in V1 and V2 (and now biphasic T Waves in V3 forming) with low voltage in limb leads are nothing unusual. Sure, if they were always inverted on the 2 MIGHT be normal variant for a young person (I am 61 and mostly sedentary but not obese) but new Biphasic waves too? Much less likely. I was so angry and upset that I was in tears on the way home. Now, the last couple weeks I have noted that every time I stretch out (leaning back on sofa with legs outstretched (only when very relaxed) or when waking my Blood Oxygen Sat drops very low. Typically drops between 88%-71%. I notified them on the 9th June. The nurse got back with me and asked (thru patient portal) if there was dizziness or shortness of breath when this happened, no. I then let them know that the latest drop was down to 64%. Then nothing till Friday, June 13. The nurse had him call me and he basically told me to sleep propped on pillows and set alarm clock every hour or 2 and sit upright till it gets normalized then I can go back to sleep. He said if it doesn't come right back up in a few minutes to go to ER (did that already on May 23 but, since it only happens when relaxed or during sleep (neither of which is possible in an ER setting) and I wasn't in the middle of a heart attack at that moment they just sent me home. So, he said "See you Thursday". and that was that. Talked to my insurance company and they aren't too pleased. They set me up for their 2nd Opinion option and they are supposed to call me Monday to go over all my history, etc and will pull my records and assess the case. They told me I need no referral and to set up an appointment Monday for a Cardiologist at another network that takes their coverage and see what mine says Wednesday and if he isn't being proactive with my case then to kick him to the curb. They also told me to change my PCP to one at another clinic network. We shall see where it goes next. Been Prodromal for Cardiac since mid January so clock is ticking and the wheels of the healthcare system move very slowly.

Thank you!

My latest CBC-DIFF showed normal but I will be doing a second check on this soon to be certain on that. Cardiology wise....found one and went in last week where he totally gaslit me the entire appointment. Told me my symptoms weren't cardiac related. 2 sentences later he asked me what my symptoms were (he didn't even know!) and when I went to tell him (intermittent shortness of breath, fainting, dizziness, lightheadedness, fatigue, nausea and cold sweats) I only got to the first 3 and he cut me off and said no, not cardiac related. Never asked me about earlier medical testing, family history, nothing. He said my persistent T wave inversions (over 8 months) in V1 and V2 (and now biphasic T Waves in V3 forming) with low voltage in limb leads are nothing unusual. Sure, if they were always inverted on the 2 MIGHT be normal variant for a young person (I am 61 and mostly sedentary but not obese) but new Biphasic waves too? Much less likely. I was so angry and upset that I was in tears on the way home. Now, the last couple weeks I have noted that every time I stretch out (leaning back on sofa with legs outstretched (only when very relaxed) or when waking my Blood Oxygen Sat drops very low. Typically drops between 88%-71%. I notified them on the 9th June. The nurse got back with me and asked (thru patient portal) if there was dizziness or shortness of breath when this happened, no. I then let them know that the latest drop was down to 64%. Then nothing till Friday, June 13. The nurse had him call me and he basically told me to sleep propped on pillows and set alarm clock every hour or 2 and sit upright till it gets normalized then I can go back to sleep. He said if it doesn't come right back up in a few minutes to go to ER (did that already on May 23 but, since it only happens when relaxed or during sleep (neither of which is possible in an ER setting) and I wasn't in the middle of a heart attack at that moment they just sent me home. So, he said "See you Thursday". and that was that. Talked to my insurance company and they aren't too pleased. They set me up for their 2nd Opinion option and they are supposed to call me Monday to go over all my history, etc and will pull my records and assess the case. They told me I need no referral and to set up an appointment Monday for a Cardiologist at another network that takes their coverage and see what mine says Wednesday and if he isn't being proactive with my case then to kick him to the curb. They also told me to change my PCP to one at another clinic network. We shall see where it goes next. Been Prodromal for Cardiac since mid January so clock is ticking and the wheels of the healthcare system move very slowly.

@lightgoddess thank you so much for your kind words and prayers deeply appreciate them deeply appreciate you!
My heart goes out to you! The medical profession and a lot of physicians (using that word lightly anymore) seem to need a person's symptoms to match pretty close to 100% of a known disorder or disease for them to diagnose and treat. Lazy and unqualified people supposedly taking "care" of us.
My deepest prayers and thoughts are with you, don't give up you deserve to be taken care of and treated both medically and as a valued human being with compassion and to be not just heard but listened to, not cut off dismissed or slighted. I cry with you I know from my own experiences how you feel, it's not right that we have to fight and suffer such in justice. But whatever you do don't give in or give up! I have a new pcp and he is so wonderful compassionate and quick on getting me into an oncologist. I told him straight up that I need him to listen to me and to not dismiss me or my symptoms and above all be straight up honest with me no matter what. Other wise I will not respect
him. He agreed and has lived up to that agreement. I make sure I thank him for doing so every time. I even went to him when I wasn't sure about the oncologist, he listened and told me he felt this oncologist will fight for me to do all he can for me. So having that strong patient doctor bond is helping me to give other medical professionals a chance. Mind you a chance not multiple chances. We are hoping for at least a remission there will not be a cure especially with the pancreas being involved...the remission maybe short. But if I can get at least a couple more years to share with my now 12 year old g-son who has autism I will be grateful...sorry I did get off topic.
I just hate to know another human being (you) are having to go through so much emotional trauma and fight just to be heard. You might consider reporting these drs about their conduct towards you and how it has effected you. I am regarding mine.
I send my love and prayers to you as well!

Good morning, @lightgoddess. My goodness, you’ve sure been through the wringer with this ongoing health issue since January! You’re right, the wheels of healthcare can move very slowly… been there myself. It’s incredibly frustrating and anxiety inducing! When you know something isn’t right and you feel there’s potential heart related issue, time is of the essence. I’m so sorry you’re not being heard!

Some positive news though is that your lab results came back in normal range, showing a reduction in the inflammation. But that still doesn’t answer what’s causing the dramatic drop in your blood oxygen level and other symptoms.

I’m encouraged for you that your insurance company is going to bat for you! That’s fantastic. For all the negatives we generally hear about some of the insurance companies it’s refreshing to hear that they have your back on this and nudging you to another clinic. I think that’s a good idea.

You initially joined Connect with the discussion in Blood Cancers & Conditions because of your elevated Ig numbers. Heart related issues are out of my area of experience so I feel you might might get more feedback from members sharing similar symptoms in the Heart & Blood Health support group.

Click on the link I’m providing below. If you’d like, you may start a new conversation or peruse the discussions to see if there’s one you want to join. Feel free to pop in anywhere! https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Since you’re going to be starting life fresh with a new cardiologist and PCP, I found a helpful discussion in Connect about:
Your Tips on How to Get Off to the Best Start with a New Specialist
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
I sure hope you have a much better experience with your new health care team! Will you let me know what you find out please?