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Anyone have pain after BCG Treatments, especially with urination?

Posted by tgsmith @tgsmith, May 1 1:13pm

I’m receiving BCG treatment for a bladder cancer. I’m on my fourth week. Has anyone had pain after the treatment I have and it’s severe when I have to go to the bathroom please let me know.

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allen1947 | @allenshirl | Jun 14 2:46pm

Although I did not have pain after BCG, I did have excruciating pain for some days after my first BC surgery. I researched (using AI) before second surgery and asked Urologist to consider prescribing both the Phenazopyridine and Oxybutynin. He did and only had minor discomfort after the surgery. Second time around seemed much easier but next week must have third surgery followed by Adstiladrin treatments.

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tgsmith | @tgsmith | Jun 14 3:28pm
In reply to @allenshirl "Although I did not have pain after BCG, I did have excruciating pain for some days..." + (show)
Profile picture for allen1947 @allenshirl

Although I did not have pain after BCG, I did have excruciating pain for some days after my first BC surgery. I researched (using AI) before second surgery and asked Urologist to consider prescribing both the Phenazopyridine and Oxybutynin. He did and only had minor discomfort after the surgery. Second time around seemed much easier but next week must have third surgery followed by Adstiladrin treatments.

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Pray all goes well

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tms3 | @tms3 | Jun 14 4:47pm
In reply to @dianeh330 "I have had 6 injections of the BCG . Dr. Prescribe numbing cream I get at..." + (show)
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I have had 6 injections of the BCG . Dr. Prescribe numbing cream I get at pharmacy I can't say I have had any pain other than pressure when voiding and very little bleeding.

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Please don't take this question to be a sexist issue. I'd just like to figure out what's going on with my BCG pain. So, I wonder, could it be that women have less pain from BCG just because their unitary tract is not as long and doesn't have the prostate along the way? When my doctor said his other BCG patients haven't reported the same pain I have had, could gender have an influence?

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tgsmith | @tgsmith | Jun 14 5:55pm
In reply to @tms3 "Please don't take this question to be a sexist issue. I'd just like to figure out..." + (show)
Profile picture for tms3 @tms3

Please don't take this question to be a sexist issue. I'd just like to figure out what's going on with my BCG pain. So, I wonder, could it be that women have less pain from BCG just because their unitary tract is not as long and doesn't have the prostate along the way? When my doctor said his other BCG patients haven't reported the same pain I have had, could gender have an influence?

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I’m female and had a Lot of pain so do not think it matters about the sex

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tgsmith | @tgsmith | Jun 14 5:58pm
In reply to @tgsmith "I’m female and had a Lot of pain so do not think it matters about the..." + (show)
Profile picture for tgsmith @tgsmith

I’m female and had a Lot of pain so do not think it matters about the sex

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And it was bad enough that I told the doctor I would not take the treatment again thank God I was on my 6th treatment, also my doctor said the same about other patients I just do not think that the doctors know everything

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tgsmith | @tgsmith | Jun 14 6:40pm
In reply to @allenshirl "Although I did not have pain after BCG, I did have excruciating pain for some days..." + (show)
Profile picture for allen1947 @allenshirl

Although I did not have pain after BCG, I did have excruciating pain for some days after my first BC surgery. I researched (using AI) before second surgery and asked Urologist to consider prescribing both the Phenazopyridine and Oxybutynin. He did and only had minor discomfort after the surgery. Second time around seemed much easier but next week must have third surgery followed by Adstiladrin treatments.

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My doctor stated he would only give me phenazopyridne, I’m in Mississippi and I think they do not want to prescribe pain meds, that is wrong when someone has cancer and they are in pain from the treatment

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tms3 | @tms3 | Jun 15 7:53am
In reply to @tgsmith "I’m female and had a Lot of pain so do not think it matters about the..." + (show)
Profile picture for tgsmith @tgsmith

I’m female and had a Lot of pain so do not think it matters about the sex

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Thanks for the feedback. Sorry your having the same problem. Has your doc given anything for the pain?

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tms3 | @tms3 | Jun 15 7:59am
In reply to @tgsmith "My doctor stated he would only give me phenazopyridne, I’m in Mississippi and I think they..." + (show)
Profile picture for tgsmith @tgsmith

My doctor stated he would only give me phenazopyridne, I’m in Mississippi and I think they do not want to prescribe pain meds, that is wrong when someone has cancer and they are in pain from the treatment

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I'm thinking they fear cansure by authirities or loss of license. This is very disheartening.

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tms3 | @tms3 | Jun 15 8:08am
In reply to @allenshirl "Although I did not have pain after BCG, I did have excruciating pain for some days..." + (show)
Profile picture for allen1947 @allenshirl

Although I did not have pain after BCG, I did have excruciating pain for some days after my first BC surgery. I researched (using AI) before second surgery and asked Urologist to consider prescribing both the Phenazopyridine and Oxybutynin. He did and only had minor discomfort after the surgery. Second time around seemed much easier but next week must have third surgery followed by Adstiladrin treatments.

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What is adstiladrin?

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talltxlady | @talltxlady | Jun 15 9:06am
In reply to @tms3 "What is adstiladrin?" + (show)
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What is adstiladrin?

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Instillation of bc rx (BCG treatment).

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