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Small Fiber Neuropathy

Posted by Marlene Eckert @me1229, Oct 31, 2019

I am currently on 1200 mg of Gabapentin twice daily. My pain is not totally controlled at this level. My pain level gets worse as the day goes on and is worse at night. I like my one glass of red wine at night. I wonder if that is an issue with my pain. I’ve tried adding Cymbalta that created severe dry mouth then stopped that and tried Lyrica and that was just as bad. Now my doctor wants to try increasing the Gabapentin to 3600 mg a day. Here is another point. Can anyone tell me about their experiences

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Mariette R. | @marietter | May 29 4:32pm
In reply to @vaun "I do not take tramadol. I have tried it, but it did nothing for me. I..." + (show)
@vaun

I do not take tramadol. I have tried it, but it did nothing for me. I use acetaminophen 650mg, as needed, and Gabapentin 200mg at night

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I now also take arthritis strength acetaminophen with an additional 200 mg Ibuprofen when I’m really hurting. Pain physician said that was excellent to do. Acetaminophen for pain and ibuprofen for inflammation .

REPLY
jchet | @jchet | May 31 11:13am
In reply to @bettyg81pain "Are you not taking Tramadol? I couldn’t survive without it!" + (show)
@bettyg81pain

Are you not taking Tramadol? I couldn’t survive without it!

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Yes, how much do you take how have your symptoms lessened?

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stacy4man | @stacy4man | 6 days ago
In reply to @budjo611 "I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and..." + (show)
@budjo611

I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and Lyrica together. Nothing, I mean NOTHING works well. I was diagnosed with SFN 3 years ago. It’s obvious, at least in my case, nothing works well.
Sorry to be so negative, but it seems the medical field is oblivious to methods of treatment. There are clinical trials ongoing, and I’m volunteering my body to one. But it doesn’t start till January. Best I can say is don’t give up. You’re not alone. It’s not in your mind. It’s all too real, and it’s truly life altering!!!!!
Hope is the only thing that keeps me going..
HANG ON TO HOPE!!!!!
BOTH HANDS!!!!!

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How did your clinical trial go?

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