Has anyone ever been misdiagnosed with metastatic bone, kidney and lym

Posted by christinaclc @christinaclc, Jun 3 9:07pm

I was recently diagnosed with metastatic bone cancer from unknown source, then kidney cancer which was a small benign cyst and now lymp node cancer? Bone biopsy was negative and kidney. Please help

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northoftheborder | @northoftheborder | Jun 4 11:55am

In reply to @christinaclc "CT scan" + (show)

A CT scan with a contrast agent, I presume? Those are very hard to interpret. I just had one for routine monitoring of my stage-4 prostate cancer, and it's down to the skill of the radiologist to look at increased uptake in an area and conclude that it's likely due to something other than cancer (especially if there's corroboration elsewhere in my medical chart, like bloodwork that contradicts cancer in that location).

In your case, I'm guessing it was inconclusive enough that they wanted to do biopsies to be certain. Not that they were convinced you had cancer, but that increased uptake of the contrast agent in those areas meant that *something* was going on, and they wanted to rule out cancer.

fraaseo | @fraaseo | Jun 4 12:51pm

I would definitely get a 2nd opinion before they do anything! Something doesn’t sound right.

christinaclc | @christinaclc | Jun 5 11:12am

In reply to @val64 "A CT scan can't tell if a growth is cancer or not (although if there are..." + (show)

Benign cyst in kidney. 12r is suspected malignant now and no word on 4 r

christinaclc | @christinaclc | Jun 13 10:23pm

In reply to @val64 "What test(s) was the cancer diagnosis based on? What did the report say?" + (show)

CT was the original diagnosis

christinaclc | @christinaclc | Jun 13 10:26pm

In reply to @northoftheborder "A CT scan with a contrast agent, I presume? Those are very hard to interpret. I..." + (show)

The doctors said it was cancer but they can’t find the original source though I have had biopsies. The oncologist said it was cancer but she didn’t know what kind or where. Very frustrating. Is been 2 months. I am changing hospitals now.

christinaclc | @christinaclc | Jun 13 10:28pm

In reply to @fraaseo "I would definitely get a 2nd opinion before they do anything! Something doesn’t sound right." + (show)

I agree. There has been no actual diagnosis for where the original cancer is so I am going to a different hospital

christinaclc | @christinaclc | Jun 13 10:30pm

In reply to @northoftheborder "A CT scan with a contrast agent, I presume? Those are very hard to interpret. I..." + (show)

Three different doctors said it was cancer metastasis to bone but they don’t know what cancer or where the origin is from. This is after two months

christinaclc | @christinaclc | Jun 13 10:34pm

In reply to @christinaclc "Three different doctors said it was cancer metastasis to bone but they don’t know what cancer..." + (show)

CT, two MRI, because they used the wrong slides for kidney, PET scan which lit up many areas, repeat MRI and kidney is good. Bronchoscope of 2 lymph nodes. One good and the other suspicious for malignancy.

christinaclc | @christinaclc | Jun 13 10:38pm

In reply to @christinaclc "Benign cyst in kidney. 12r is suspected malignant now and no word on 4 r" + (show)

12r is still pending. The bone biopsy was negative but the doctors still insist it is metastatic bone cancer from whatever part they biopsy whether negative or inconclusive

christinaclc | @christinaclc | Jun 13 10:42pm

In reply to @christinaclc "12r is still pending. The bone biopsy was negative but the doctors still insist it is..." + (show)

The thing is I am not in any pain and I am not sick. Thankfully to God 🙌. I have only lost around 10 lbs due to stress, lack of sleep, etc. The oncologist wanted to prescribe more pain medication but I haven’t needed it. I canceled my appointment with them and I am going to seek treatment elsewhere