Husband newly diagnosed

Posted by momshmallow @momshmallow, Jun 8 10:21pm

My husband is only 62 and was just diagnosed with Esophageal cancer. It sounds serious and I am very frightened. I want him to go to Boston which is only 35 minutes away where they appear to have a specialty group. How long can the wait be?

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@jmaaccg

My husband is taking ivermectin and fendendazole as we wait for our oncology appointment next week. Several people have told us about this combination helps to break down the cancer cells. Has anyone tried it?

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Hello @jmaaccg, there's a lot of information as well as misinformation circulating about ivermectin and its use as a treatment for cancer. It does not clear or cure cancer.

Ivermectin is used to treat river blindness (onchocerciasis), intestinal infection from threadworms (strongyloidiasis), and other kinds of worm infections. Ivermectin is an anthelmintic. It works by interfering with the nerve and muscle functions of worms, by paralyzing and killing them. (https://www.mayoclinic.org/drugs-supplements/ivermectin-oral-route/description/drg-20064397)

Researchers are studying Ivermectin to see if it may be used as an anti-cancer drug and early studies show promise. Please note that this research is in the early stages (mice studies) and has not yet been tested in human trials. Ivermectin is not yet a proven standard treatment for cancer or other off-label diagnoses.

@jmaaccg, facing a new diagnosis must be difficult and a lot to process. Is your provider aware that your husband is using ivermectin and fenbendazole?

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@JustinMcClanahan

Hello @jmaaccg, there's a lot of information as well as misinformation circulating about ivermectin and its use as a treatment for cancer. It does not clear or cure cancer.

Ivermectin is used to treat river blindness (onchocerciasis), intestinal infection from threadworms (strongyloidiasis), and other kinds of worm infections. Ivermectin is an anthelmintic. It works by interfering with the nerve and muscle functions of worms, by paralyzing and killing them. (https://www.mayoclinic.org/drugs-supplements/ivermectin-oral-route/description/drg-20064397)

Researchers are studying Ivermectin to see if it may be used as an anti-cancer drug and early studies show promise. Please note that this research is in the early stages (mice studies) and has not yet been tested in human trials. Ivermectin is not yet a proven standard treatment for cancer or other off-label diagnoses.

@jmaaccg, facing a new diagnosis must be difficult and a lot to process. Is your provider aware that your husband is using ivermectin and fenbendazole?

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His pcp and Gi doctors know and we will inform the oncologist when we go for our initial visit next week.

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@momshmallow

Hello Scott!
Where would one look for a tumor board?
I will ask the doctor at Brigham and Women's today.
Thank you!!

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Check area hospitals that have oncology. Call and talk to oncology department. Ask them if they have a tumor board and any other questions you may have. Ask about treatments they have for EC.

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So, just back from Boston. Saw chief of thoracic surgery at Brigham & Women's. He has accelerated the pace of things. Says we need to move faster than what is happening in NH (where we live). He made a lot of calls, orders, and sent messages to other doctors.
There will be some procedures on Monday with the surgeon (I believe another biopsy), Dana Farber oncologist on Tuesday, PET on Wednesday, surgery for jtube insertion on Friday.
At least he will be getting some nutrition and the Boston team will have all the tests and scans needed.

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I’m so glad for you guys! They are moving quickly that is very good news. It sounds like you have a good team. Let us know how you are doing ok. You got this!!

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I am trying to hold onto hope. I have some friends who keep reminding me that it may all go badly.
I am trying to stay positive.
The biggest fear is if it has spread to his liver.
My friends say if that has happened, he will be dead in less than 6 months.

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Not necessarily there are so many different options for treatments and they just keep on getting better all the time. Please wait and listen to what the doctors say. Remember to ask questions about all your concerns. Stay positive and have faith that this will have a positive outcome. Thinking of you and your husband.

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Thank you once again. I think it was just an overwhelming day.
We are both just shocked, scared, and honestly horrified at what is happening.
I'm trying to appear cheerful, calm, and concerned.
My best friend is going to take me for a drive tomorrow so I can try to regain my composure.

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@jmaaccg

My husband (62 years young) of 40 years was officially diagnosed with esophageal cancer on Monday. We had a egd on May 30, doctor told us then he had a tumor and it was cancer. Biopsy came back Monday confirming his diagnosis. Also his ct showed suspicious spots on his liver and kidney. Our world and emotions are a mess. Our appointment with the oncologist is next week. Most of what we have read has not been encouraging. Reading everyone’s stories is giving us hope. We serve a God who can heal and our trust is in Him.

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Referring back to your initial post about the Boston facility. Highly recommend you get all diagnostic testing done wherever available, then discharge and request referral to the Comprehensive Cancer Treatment Center. I've been where your husband is and now further down the road, it's beyond clear to me that your goal should be to go with the best. My sincere best wishes to you both on your journey, which, believe it or not, will almost certainly become easier as you progress.

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@goldenshadow

Being strong for each other is so important. Hi I’m Scott I’ve had EC since July of 2024. So I don’t know what treatments you might get. So I had flot treatments that is 4 chemotherapy treatments within a two month period with 3 different chemo drugs. Then waited 5 weeks had surgery with 2 surgical teams 9 hours. Waited 4 more weeks and had 4 more chemotherapy treatments. Through all this I had a I got this attitude always positive. Also my wife, my boys and my family were the greatest support team I could have possibly had. My oncologist my surgeons all the nurses were awesome. This is the most important part of this journey. So it’s so important you trust your doctor or doctors. Ask any all questions you have. Great doctors won’t shy away from your questions. Should have a nutritionist also that will help with all your concerns about eating and keeping weight on. I had a j tube for 7 months because I couldn’t eat or drink. That was great for keeping weight on for me. That’s and option if need be. So my treatments have been done for 2 months now. Eating is getting better depending on foods. You’ll have ups and downs. But you got this!! There’s other patients on here also that can help with different aspects of this cancer. Also I’m 62!

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Thank you for sharing your journey.

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