Doctors claim oxycodone exacerbates pain but nothing else helps
Hello. I have reached out to the forum before on behalf of my best friend with chronic pain and I am back again with another query....
My best friend had yet another upper endoscopy today to attempt to find a cause for the constant and intense abdominal pain that she suffers. She has a long history of food allergies, gastroparesis & other gastro issues spanning most of her 49 years but, several years ago she began a cycle of getting pancreatitis repeatedly with 6-12 months in between. The abdominal pain has never gone away & is so intense that she can no longer work, especially since she had a nerve block a couple of years ago that she claims actually made it worse. She now relies heavily on the oxycodone & it doesn't take her pain completely away but she is able to function at least. It is the ONLY thing that seems to work for her and she hates it because of the side effects.
Today after the latest endoscopy, this doctor joined a series of docs that have suggested that the oxycodone she takes to relieve the pain is actually exacerbating the pain and that she should consider getting off of it. The doctor that renews her prescription for it monthly doesn't seem to see that as an issue & my best friend doesn't know what to do because of course she'd love to get away from the oxy but the pain is too intense without it and no one seems to have an alternative for her.
I guess I came here to ask if anyone else has heard that the opioid they take for pain may be making it worse & if there are non-opioid alternative that actually work for this type of pain.
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I tried the oxycodone when I was first diagnosed with cancer. I've been taking hydrocodone for severe back issues for 20 years. The oxycodone didn't do a thing for my pain so I told doctor I wanted to go back to hydrocodone and he added an ER 15mg morphine to take every 12 hours for the bone pain from these WBC booster shots and use the hydrocodone for breakthrough pain every 6 hours. I was taking the hydrocodone every 6 anyway. Can they try her on another pain med?
Good morning.
It might be a great suggestion to your friend to join the forum directly to share her experiences.
There are many things that you mentioned that need to be clarified to understand her situation. She would be best to do that. You are a good friend and advocate for offering to help.
You do mention that the doctor that prescribed the oxy doesn't seem to think there is a problem. Well of course not! Otherwise, why would he prescribe?
There are many opportunities to understand the cause of her pain and it does need further clarification.
I get so tired of these doctors that discourage people from taking a narcotic like Oxycodone. Yes, there has been claims that taking this can increase your pain level. In my case, that is not true at all! After five back surgeries, including two fusions, Oxycodone is the only thing that helps dealing with the pain. I’m on the lowest dose and have been for four years. My question is, is she seeing a Pain Doctor? If not, I would encourage her to do so. They seem to be the only doctors that understand chronic pain and how debilitating it can be. Good luck to her, I hope she can find a doctor that understands chronic pain.
There is a thing called hyperalgesia. With hyperalgesia syndrome, taking large doses for a long time, can actually make her pain level worse. My hope would be that she strongly pursue whatever is the root cause of her abdominal pain. Taking narcotics will only add to any abdominal issues due to the constipation caused from the pain meds.
I was looking for a new local PCP. I went to him for a year and he new I was on Oxycodone. In the past he said he would take over my script from my other PCP out of town I had used for years.
When I finally decided to make a change to a local PCP I asked him to take over the script for Oxy he all of a sudden said NO!
Seems to be some new edict from the government or some entity to stop prescribing Oxy!
I have been on 3 a day for the last 6 years because of the headaches and fatigue I get from Lyme Disease!
I would not be alive because of the pain I suffered when I first came down with Lyme!
Sundance aka RB
PS. on the same visit he also told me he had talked to a couple Infectious Disease doctors and said Lyme Disease does not exist! NEEDLESS TO SAY I'M STILL LOOKING FOR A LOCAL PCP! I FIRED HIM!!
According my prescriber doctor, after prolong use and abrupt stopping, one may experience pain from the excited nerve ending.
I've been on hydrocodone for 15 to 20 years. I go to a pain clinic. I have had Drs try to get me to discontinue because they think if you use an opiod your addicted. Once you stop it's hard to get a prescription again. Oxycodone was tried once and I didn't like it so was prescribed hydrocodone again at a larger dose and 5 a day instead of 4. That has worked most of the time. I'm saying be careful of Drs prejudice against opiods over your pain needs.
PREJUDICE IS ONE THING! This is quite another! Don't know where it is coming from!
If you tell somebody you are taking Oxy they think you are "DRUGGED OUT!"
After my last TBI the doctor wanted to take me off of Oxy and put me on Hydrocodone!
After 3 weeks of recovery my Headaches continued, from Lyme disease! I went back on the Oxy and doing better!
The medical profession is no longer what they were and have become totally unreliable!
All they want to do is run more tests to get more $$$$$$!
Sundance aka RB
Oh she is adamant that there must be a cause for the pain and is vigilant about finding it but she feels that the doctors aren't doing enough to find the cause of the issue. They do endoscopies but never find anything - that is why they claim it has to be the oxy.
One doc has told her that there is a possibility that this pain will never go away - having something to do with the recurring pancreatitis. I honestly think that may be the closest that she ever comes to an answer but she is determined to find a doctor to figure it out. Unfortunately it seems that no one in the medical field in our area shares her fervor to find the solution for her. It has been suggested that she look into palliative care & I personally feel that she should look at a pain management clinic but I believe she thinks that is giving up in a way.
Ideally she would like to be completely healed and able to return to work but right now she is walking with a walker due mostly to the pain.
She is not seeing a Pain doctor at this time although I will be bringing it up to her when I see her next because I completely agree that is who she needs to be seeing. Thanks!