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Essential Thrombocythemia treatment with Besremi
Blood Cancers & Disorders | Last Active: Sep 1 4:37pm | Replies (70)Comment receiving replies
Hi, I've been taking anagrelide for over 10 years. We tried HU for about a month. I had every single side effect, with the exception of mouth sores thankfully. My platelets are in a good place; they go up and down as everybody else's. I also had some heart problems, a mitral valve replacement. I just make sure to keep my BP under control, Not sure this is helpful, but good to know others are in the same boat!
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Glad the anagrelide worked for you heart-wise. Like I said, I went with my cardiologist's rec. So far, my mitral valve prolapse is moderate/severe, but it has been there x 10 years, so hoping it just keeps stuttering along as is without the need for surgery. I have it checked every six months and get a yearly ECG. I don't want open-heart procedure, but would go for the transcath deal. Over 70 now, so better odds that insurance would approve it.
I haven't had problems with the HU, but I would revisit anagrelide if I did.