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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)

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Profile picture for janetlen @janetlen

@statmatics I hope your Dr told you that the excess blasts puts you at a higher risk of developing AML? Did he tell you what risk level you are at? What level are your blasts at? I know your head is probably spinning, but with the excess blasts, you should probably be aggressive. You can download the IPSS-M risk calculator from mds-foundation.org to determine your risk level as well as documentation about the disease.

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Replies to "@statmatics I hope your Dr told you that the excess blasts puts you at a higher..."

Hi Janetlen -- Sadly I am well aware of the poor prognosis. The doctor gave me all the data and all the statistics (blasts 10% in the bone marrow). Since you did not mention any "halfway treatments," I guess there are none.