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Replies to "hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site..."
Blood Cancers & Disorders | Last Active: Jul 7 12:31pm | Replies (114)
Comment receiving replies
Replies to "hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site..."
Sorry to here he joined our band of rare misfits....I have had Primary MF for two years, been to numerous doctors chasing cause, effect, and treatment. From two Specialists in the field...seems to be something that just IS in your body waiting to kick in. Usually kicks in after 55...not always...and may not kick in at all...I went back to my annual physical documents and there were signs...but no symptoms.
I too take Hydrea with what my doc says are Very rare side effects. Some expected. Talked about some alternative drugs...but Hydrea is cheap...Jakafi would cost me $7000 a mont. good news lots of other options...and I have the Jak2 as well...just trade cost to manage vs the actual side effects you get. Hope that helps...good luck to you both!
Steve