Welcome to Connect, @dot65.
I moved your message to this discussion so you could meet others who are talking about myelofibrosis, like @heartspace @wellness3070 @rcand10s @gael and @bjsdancer.

Dot, you asked about weight loss. Some people do experience unintended weight loss. How is your appetite? Have you spoken with a dietitian?

And complaining? Lol. Seriously, it Could be an enlarged spleen which sits above your stomach making you feel full. Have you a reduced appetite? This is very common with Myelofibosis......They need to physically check your spleen size....feel it on lower left of chest. And enjoy the skinney