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wellness3070 (@wellness3070)

Myelofibrosis*

Blood Cancers & Disorders | Last Active: Sep 27 11:27am | Replies (74)

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@kanaazpereira

Hello @wellness3070,

Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you can view that discussion here: http://mayocl.in/2iPBxwp

I would also encourage you to watch this video of Dr. Ayalew Tefferi discussing potential new drugs for treating Myelofibrosis as well:

@wellness3070, there seems to be a range of treatments offered to people with myelofibrosis besides medication: blood transfusions, radiation therapy, chemotherapy, surgery to remove the spleen (splenectomy), bone marrow transplant. Have you and your doctor discussed any one of these as a possibility?

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Replies to "Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you..."

Hi, Aware of other treatments, but nothing other than Jakafi B.I.D.is now treatment of choice. Anemia and leg weakness still chronic problem.

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