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Anyone want to talk about Myelofibrosis?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (165)
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@kanaazpereira

Hello @wellness3070,

Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you can view that discussion here: http://mayocl.in/2iPBxwp

I would also encourage you to watch this video of Dr. Ayalew Tefferi discussing potential new drugs for treating Myelofibrosis as well:


@wellness3070, there seems to be a range of treatments offered to people with myelofibrosis besides medication: blood transfusions, radiation therapy, chemotherapy, surgery to remove the spleen (splenectomy), bone marrow transplant. Have you and your doctor discussed any one of these as a possibility?

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Replies to "Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you..."
wellness3070 | @wellness3070 | Jan 7, 2017

Hi, Aware of other treatments, but nothing other than Jakafi B.I.D.is now treatment of choice. Anemia and leg weakness still chronic problem.

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stevehurlburt | @stevehurlburt | Jul 21, 2020

Page not found...dang it! Wanted to read

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bmarkable | @bmarkable | Mar 13 6:12am

Hi, in this video, it is not clear what new drug or treatment this Doctor is referring to, which he says attempts to make Myelofibrosis regress, instead of just masking tge symptoms. Please say. Thanks. THURS, 13 March

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