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SVT & Ablation

Heart Rhythm Conditions | Last Active: 22 hours ago | Replies (24)

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@ladybugmollysue

I am now on elequis for the rest of my life! The PE was the symptom that caused the SVT for me but I have a propensity for clots because I have Factor V Leiden antibody (I call it a mutant gene) that helps the clots form more easily. It is genetically passes on by one or both parents. My Mom had it, and my sister has it

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Replies to "I am now on elequis for the rest of my life! The PE was the symptom..."

Thank you for your reply. I also have factor V Leiden-one parent. Are you familiar with APS, A.K.A. ANTIPHOSPHOLIPID SYNDROME.? I WAS WONDERING IF YOU WERE WORKED UP FOR THIS, SINCE YOU ARE KNOWN TO HAVE BLOOD CLOTS? It is not unusual for a doctor not to be aware of this condition or test for it. You can visit the APS website and also Facebook groups to learn about the condition. With AI it is easy to learn what tests should be done to check for this auto antibody condition. I learned about this because I have a very high antinuclear antibody (ANA) of 1:1280. I don't think any of this is related to SVT, but I'm throwing it out there in case you should be checked for hypercoagulability Eliquis would not help this condition!! You would need to be on warfarin if treatment is warranted.

I do not mean to alarm you but rather just inform you. I have read many stories where the condition was not diagnosed. Testing must be done on two occasions, and show positive both times(at least 12 weeks apart). You must also have a clinical event as well, which you do because of your blood clots

I do not mean to worry you but just wanted to throw it out there. I have learned a lot along my health journey.