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Anyone want to talk about Myelofibrosis?
Blood Cancers & Disorders | Last Active: May 21 6:00pm | Replies (185)Comment receiving replies
Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this disorder. Is this a recent diagnosis for you? We look forward to getting to know you better and having others share with you from their experiences as well.
Replies to "Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this..."
I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just looking for people that has this as well and how are they dealing with it.
well my interest in MF is personal. I was diagnosed in 2022. I'm looking forward to relocating to the Phoenix Mesa area to be in a more active medical environment
@hopeful33250
Hello,
I was diagnosed with APS, Jak2 and Myelofibrosis about 7 weeks ago after having horrible pain in my abdomen. Went to the emergency room to fi d out i had blood clots, and enlarged spleen and liver. BMB confirmed scarring in the the bone marrow. Heading to Mayo in AZ next month to meet with MPN specialist.
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I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential thrombocytosis which I had for about 10 years . I am considered "stable " currently, and am at a moderate level of myelofibrosis . 4 1/2 years ago my medication was thus changed .