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Blood Cancers & Disorders | Last Active: Jul 7 12:31pm | Replies (114)
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Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this disorder. Is this a recent diagnosis for you? We look forward to getting to know you better and having others share with you from their experiences as well.
Replies to "Hello @wellness3070 and thanks for beginning this conversation. Please share with us your interest in this..."
I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just looking for people that has this as well and how are they dealing with it.
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I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential thrombocytosis which I had for about 10 years . I am considered "stable " currently, and am at a moderate level of myelofibrosis . 4 1/2 years ago my medication was thus changed .