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Nut cracker syndrome

Posted by mckinney3711 @mckinney3711, Jun 10 10:11pm

How do you find out if you have nut cracker syndrome? I have been to 2 urologist where I live and they have done every test that they can think of and still nothing. Who do you go to to get tested for it?

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kdalda75 | @kndaustin71 | Jun 11 4:20pm

How is it that you think you have Nutcracker Syndrome? The two specialty physicians I think that would be appropriate would be Nephrologist and/or Vascular surgeon. Probably best to search for experts in the field which may mean a little research on your part at some of the bigger Medical Centers, ie Mayo, Duke, John Hopkins etc. Could one of the two Urologists that you have seen suggested a referral?

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mckinney3711 | @mckinney3711 | Jun 11 10:45pm
In reply to @kndaustin71 "How is it that you think you have Nutcracker Syndrome? The two specialty physicians I think..." + (show)
@kndaustin71

How is it that you think you have Nutcracker Syndrome? The two specialty physicians I think that would be appropriate would be Nephrologist and/or Vascular surgeon. Probably best to search for experts in the field which may mean a little research on your part at some of the bigger Medical Centers, ie Mayo, Duke, John Hopkins etc. Could one of the two Urologists that you have seen suggested a referral?

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I don’t know for sure if I do have it, but I think that both urologists have ran every test that they can think of. I looked up the last test they ran to see what they could be looking for and out of all the problems the only one that kind of seems to relate to my symptoms is the nut cracked syndrome. I asked my dr if he has seen it and he said yes but it’s rare, and he cldnt tell me how they would even test for it. He wants to do one more thing before he refers me out to the bigger places but I wasn’t sure which is the best to go to. I have seen a nephrologist and she ran a bunch of blood and urine tests but didn’t find anything either.

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kdalda75 | @kndaustin71 | Jun 12 11:39am

In looking at the medical definition of Nutcracker syndrome it sound more like an architectural issue rather than information that you can get from lab work. Yes, lab work is important but that's no necessarily the presentation of the NutCracker syndrome. Again start researching other institutions that may be more well versed in your concerns. 2nd opinions never ever hurt

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mckinney3711 | @mckinney3711 | Jun 12 2:11pm
In reply to @kndaustin71 "In looking at the medical definition of Nutcracker syndrome it sound more like an architectural issue..." + (show)
@kndaustin71

In looking at the medical definition of Nutcracker syndrome it sound more like an architectural issue rather than information that you can get from lab work. Yes, lab work is important but that's no necessarily the presentation of the NutCracker syndrome. Again start researching other institutions that may be more well versed in your concerns. 2nd opinions never ever hurt

Jump to this post

Yes, that’s the plan. Have you heard of any places better than any others?

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kdalda75 | @kndaustin71 | Jun 12 4:28pm

I would certainly seek the larger Medical Centers ie Mayo, Cleveland Clinic, Duke, John Hopkins. It may require travel, not knowing where you live however you will have the advantage of a larger more eperienced, diverse team of physicians that you typically see in smaller cities. Tons along the East coast, Baylor in Texas, Vanderbilt, UAB. All of these places have great reputations. Can you PCP refer you to someone in his specialty area. Also if you start reviewing research studies you can get a feel for the Centers that research in your needed condition....go through NIH web and just enter Nut Cracker Syndrome and you will probably reveal a ton of information. Hope this helps.

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