1. < Bladder Cancer

Anyone else having cystoscopy for monitoring bladder cancer?

Posted by sien76 @sien76, Mar 14 8:22am

3 years ago was diagnosed with low grade bladder C and is now in the tri monthly follow up using cystoscopy. Occasionally new cysts observed are burned. Doctor doesn’t say if cancer still exist. Didn’t do immunotherapy so just monitoring.
Does anyone have this experience?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 23 3:02pm

@sien76, cystoscopy is used to diagnose, monitor and treat conditions affecting the bladder and urethra, including cysts and cancer. Glad to hear the most recent follow-up was clear. What treatment did you have when first diagnosed?

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nihifam4 | @nihifam4 | Mar 29 10:11am

Yes, my husband has had 5 surgeries since 1999 called TURBIT. We understand that it is bladder cancer. This is why you're doing the follow-up cystoscopy every 3 months. My husband does the same thing. If 3 month visit is clear, they will move him to every 6 months, if clear to every 9 months, if clear every 12 months.

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peg2025 | @peg2025 | Jun 12 11:24am

Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later. There were more tumors than expected and the procedure took almost an hour. Due to the amount of scraping involved over such a large area, Dr didn't flush my bladder with chemo afterwards. Dr said I'd most likely lose my bladder. I had cystoscope follow up every 3 months for a year, then every 6 months for a year and am now having annual cystoscopes. I had a couple biopsies within the first year and those were negative. There is every reason to be hopeful and optimistic. A cancer diagnosis is scary..I know..but, somehow, I've beaten the odds. I don't see why others can't too!

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3 replies
bvg | @bvg | Jun 12 1:04pm

That's fantastic! so very happy for you...

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bvg | @bvg | Jun 12 1:07pm
In reply to @peg2025 "Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later...." + (show)
@peg2025

Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later. There were more tumors than expected and the procedure took almost an hour. Due to the amount of scraping involved over such a large area, Dr didn't flush my bladder with chemo afterwards. Dr said I'd most likely lose my bladder. I had cystoscope follow up every 3 months for a year, then every 6 months for a year and am now having annual cystoscopes. I had a couple biopsies within the first year and those were negative. There is every reason to be hopeful and optimistic. A cancer diagnosis is scary..I know..but, somehow, I've beaten the odds. I don't see why others can't too!

Jump to this post

That's fantastic! So happy for you.....

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johnfromca | @johnfromca | Jun 13 9:49pm
In reply to @peg2025 "Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later...." + (show)
@peg2025

Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later. There were more tumors than expected and the procedure took almost an hour. Due to the amount of scraping involved over such a large area, Dr didn't flush my bladder with chemo afterwards. Dr said I'd most likely lose my bladder. I had cystoscope follow up every 3 months for a year, then every 6 months for a year and am now having annual cystoscopes. I had a couple biopsies within the first year and those were negative. There is every reason to be hopeful and optimistic. A cancer diagnosis is scary..I know..but, somehow, I've beaten the odds. I don't see why others can't too!

Jump to this post

I am a copycat for you. Had the operation that 'removed' the cancer. Several follow -ups on three mon6th intervals and now entering the 6 month stage. When the guy fell off the 20 story building, they heard him as he passed the 10th floor, "So far, so goo"
Jack

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2 replies
peg2025 | @peg2025 | Jun 13 11:08pm
In reply to @johnfromca "I am a copycat for you. Had the operation that 'removed' the cancer. Several follow -ups..." + (show)
@johnfromca

I am a copycat for you. Had the operation that 'removed' the cancer. Several follow -ups on three mon6th intervals and now entering the 6 month stage. When the guy fell off the 20 story building, they heard him as he passed the 10th floor, "So far, so goo"
Jack

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Ha! Exactly. I am so thankful for each cancer free day..with a bladder.

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peg2025 | @peg2025 | Jun 13 11:09pm
In reply to @johnfromca "I am a copycat for you. Had the operation that 'removed' the cancer. Several follow -ups..." + (show)
@johnfromca

I am a copycat for you. Had the operation that 'removed' the cancer. Several follow -ups on three mon6th intervals and now entering the 6 month stage. When the guy fell off the 20 story building, they heard him as he passed the 10th floor, "So far, so goo"
Jack

Jump to this post

And best of luck to you

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dianeh330 | @dianeh330 | Jun 14 12:44pm
In reply to @peg2025 "Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later...." + (show)
@peg2025

Hello. I was diagnosed with "aggressive" bladder cancer in 2017. Had TURBT a few weeks later. There were more tumors than expected and the procedure took almost an hour. Due to the amount of scraping involved over such a large area, Dr didn't flush my bladder with chemo afterwards. Dr said I'd most likely lose my bladder. I had cystoscope follow up every 3 months for a year, then every 6 months for a year and am now having annual cystoscopes. I had a couple biopsies within the first year and those were negative. There is every reason to be hopeful and optimistic. A cancer diagnosis is scary..I know..but, somehow, I've beaten the odds. I don't see why others can't too!

Jump to this post

If bladder cancer is found quickly it is curable. If you don't mind my asking how did you know it was bladder cancer

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