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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 13 11:14am | Replies (987)Comment receiving replies
Hello everyone,
My name is Sharon, I'm a professor of music, in my 80s, still working.
I have OHCM, have been struggling with it for four years, tried Camzyos for 1 1/2 years to no avail, and will have an alcohol ablation at Mayo/Rochester in late August.
Are there chat groups? I would love that.
Best to all! S
Replies to "Hello everyone, My name is Sharon, I'm a professor of music, in my 80s, still working...."
Hello @sharonmann30, and a warm welcome to you!
I'm glad you found the HCM support group, and I see you already have an excellent response.
Have you had a chance to read up on HCM/HOCM?
Here is a link to a Mayo Clinic article:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-cause
I also found this from the Cleveland Clinic about the ASA (Alcohol Septal Ablation) procedure:
https://my.clevelandclinic.org/health/treatments/22498-alcohol-septal-ablation
Will you be traveling to Mayo Clinic or do you live near by?
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Sharon,
I also have HOCM and had alcohol septal ablation at Mayo in Rochester, MN
I struggled with breathing problems for many years and was miss diagnosed. I was told that I was an asthmatic but a sudden cardiac arrest proved otherwise.
I still am short of breath but the surgery was necessary. If Mayo recommends alcohol septal ablation, then have it done. They went through my femoral artery for the surgery. I was awake for this surgery and spent 4 days in recovery. Mayo will take care of you.
Jim