I wish Mimi and all of you going through this the best of luck with doctors. If anyone finds a doctor and/or a diagnosis, PLEASE post on here and mention me (@dreamcrafterjr). I already have a team of neurologists and have for several years that diagnosed and treat me for hypersomnia, epilepsy, trigeminal neuralgia, and migraines. My first and second tonic-clonic seizure came out of no where and we're approximately 3 yrs apart. After the 2nd, I was dx with Juvenille Myoclonic Epilepsy in my mid 30's!! Just a few years after being dx with Hypersomnia. After the seizures, came the dx of Trigeminal Neuralgia. Since self discovery of the hair issues and even research, I have seen 4 dermatologists, 1 rheumatologist, my new PCP who is a D.O. vs an MD, my neurologists, my gynecologist, and now an ENT...oh, and I started out at the ER and have been back once in severe sharp pain once since then. All to have no luck. I am so discouraged and discussing it with doctors has now become more distressing to me. I see a psychiatrist and a therapist and have been prior to discovering the issue. Although I am doing better mentally in some ways, I have set backs every time I go to a doctor and try to discuss this issue. I am currently doing some self skin treatments that appear to be helping a great deal, especially with the circulation. It is still up for debate as to if my hair issues are going to resolve. I am very careful in the products I use, not to strip my skin too much and to make sure I re-moisturize it. I also take 1000mg of Vitamin C every day, which I did have labs done and found this to be deficient (which is rare).