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Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: Sep 3, 2023 | Replies (136)

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@shelleyfl35

I was diagnosed with Thymoma last year at Mayo Clinic in Jacksonville. A CT scan for something else showed an unusual growth on my thymus. A wonderful team of mayo clinic doctors removed it and I am being followed every four months with CT scans. There is a wonderful Facebook group with lots of information about this cancer. It is called thymoma cancer research. I also saw the top specialist in the country at Indiana University. His name is Dr. Patrick Loehrer. Many people have a good prognosis and new treatments are being developed every day. With a condition so rare, you have to do a lot of footwork on your own. Prayers for healing and recovery.

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Replies to "I was diagnosed with Thymoma last year at Mayo Clinic in Jacksonville. A CT scan for..."

I agree, I am calling them on Weds. and am going to try to co-ordinate two other apts . Now that is something I always have to ask for, if left on their own they will schedule them all separately ....but all in a two week period...sigh

@gaybinator You've provided some good advice! Teresa