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I am following a new drug that is awaiting FDA approval - Remibrutinib. Supposedly was to get approval months ago. Otherwise, I am resigned to Xolair which doesn't work and Allegra which doesn't work. Mine is consistent - really brutal 6 week stretches at the same time every year and then goes away. Jan-Feb, May-June, Sept-Oct. Without fail. I overtake Xolair and it still doesn't work. During the Jan-Feb outbreak when it's the worst, I take 1200mg a month with the extra dosages I save up. No change. I have no other advice for anyone, this is debilitating for sure, wish I had something better to offer.
Replies to "I am following a new drug that is awaiting FDA approval - Remibrutinib. Supposedly was to..."
My monthy injections are a total of 375 mg, and that’s the most allowed. I have to go to a hospital to get the shots. Guess there’s an option to do at home but I’d be so worried about getting them in the mail.
My used to be cyclical, also, like during the spring. But the doctor ignores that. Now it’s mostly due to compression, like eaing my workout bra or tights on too long.
A new drug, Dupixent, was approved recently and some in another forum are having good luck with it.
Try 3 to 4 Allegra a day. Talk with your doctor first. I suffered horrendous hives and welts for almost 5 years. Started taking 3 fexofenadine (Allegra) a day 8 months ago and hives have not returned. I need to add that my hives were caused from heart medications, almost every one on the market. I could not stop some of them. The fexofenadine took care of the histamine reaction I was getting.
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I have a Doctor at University of Florida.Who indicated that due to nerve damage?I have this continual breakout.