New to this support group.

Hello,
Glad to have found this group.

Recently diagnosed with PMR, I may have had it over a year. (Is that possible?) I had lots of pain in the morning but could exercise my way out of it. I kept asking people and doctors if it was common to experience so much pain in the morning at my age. (68)

In March, the pain suddenly became excruciating. I began 20mg of prednisone and had instant relief. In less than 24 hours, I felt better than I had in over a year.

I've weaned myself to 7mg but do have some pain. It is very manageable for me, much less than I've experienced in the past year. I'm extremely active. I run/walk/lift/and babysit my young granddaughter 3 days a week, so never sure if the pain is PMR or from overuse. This worries me because I don't want to discount the pain and cause the PMR to spike.

I have been gluten-free for 15 years and am somewhat on an anti-inflammatory diet now. I've lost 10 pounds. That's a lot for me. Not a bad problem to have but concerning.

More concerning is my doctor wants me to add injections of Kevzara. Anyone have these? I have had stomach issues all my life, including diverticulosis and irritable bowel. She said as long as I don't develop diverticulitis, I'm good taking Kevzara.

Any and all suggestions welcomed.

HI Kerry,
I agree with John that an anti-inflammatory diet helps. I'm a registered dietitian and eat a primarily organic whole foods, plant-based diet, high in anti-inflammatory foods and fiber. Don't forget about fiber--it is probably the most important neglected nutrient in the ultra-processed American diet. Fiber feeds our gut microbiome and our microbes help protect us from diseases-- https://newsinhealth.nih.gov/2012/11/your-microbes-you
As far as exercise goes, I do aquatic fitness, pilates, and dance 6 days a week and the only thing that has ever bothered me is using 5# hand weights versus lighter weights. My shoulders seemed to ache at night after using 5# weights. Not sure why, but my symptoms seemed more like PMR pain than after-exercise pain. I've been in remission for a couple of years now, but only had a mild case to begin with. Hope this helps you in some way.
Hugs,
Janice

Hello,
Glad to have found this group.

Recently diagnosed with PMR, I may have had it over a year. (Is that possible?) I had lots of pain in the morning but could exercise my way out of it. I kept asking people and doctors if it was common to experience so much pain in the morning at my age. (68)

In March, the pain suddenly became excruciating. I began 20mg of prednisone and had instant relief. In less than 24 hours, I felt better than I had in over a year.

I've weaned myself to 7mg but do have some pain. It is very manageable for me, much less than I've experienced in the past year. I'm extremely active. I run/walk/lift/and babysit my young granddaughter 3 days a week, so never sure if the pain is PMR or from overuse. This worries me because I don't want to discount the pain and cause the PMR to spike.

I have been gluten-free for 15 years and am somewhat on an anti-inflammatory diet now. I've lost 10 pounds. That's a lot for me. Not a bad problem to have but concerning.

More concerning is my doctor wants me to add injections of Kevzara. Anyone have these? I have had stomach issues all my life, including diverticulosis and irritable bowel. She said as long as I don't develop diverticulitis, I'm good taking Kevzara.

Any and all suggestions welcomed.

I am to bring down now, like you I also feel like I have a very mild case. Just was wondering if you can elaborate a little bit on your journey with PMR?
I started prednisone at 4 mg in dec 2024, and it took away my pain completely, which is why I believe my case was a mild one.
I have begun my taper gradually dropping 1 mg every few weeks. I am now at 2 mg with very, very mild symptoms and some days none at all.
I’m anxious to get off of it completely. I just was curious how your taper went and how long it took you to end prednisone. Any feedback would be welcome and thank you.

I started at 10 mg. because that is what my doc recommended when I told him my symptoms. I only hurt while in bed! As soon as I got up. I was pain-free! It took about a year to taper off of it and I had one flare when I caught COVID. Then I took 2 mg. and tapered off in a few weeks.
Occasionally I do feel shoulder pain in my deltoids while in bed, which may be associated with using 5# weights in my exercise classes. It seems much better since I switched to 4# weights. Not sure if I would call it a flare up or not. I hope this helps.