Is anyone experiencing osteoradionecrosis (ORN)?

Posted by suzannekay753 @suzannekay753, Nov 29, 2023

Anyone have skull base free flap reconstruction for ORN

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

@hrhwilliam

Since you had surgery there previously, you have a patient number. Just call that department and tell them what’s going on.
Or you can have your dentist make a referral or your doctor.
I assume you went to Oral maxil in 2018. Just call and ask for that desk. Otherwise a local CT should confirm ORN and from there, forward the information to Mayo.

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Thank you so much for the info. In 2018 I went to ENT for my tongue cancer surgery. I will ask my dentist for referral.

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@eve3lyn

How do you get an appt at Mayo for consult for ORN? I’m having infection in my gum right now. I think I have ORN.I’m 23yrs post radiation treatment for nasopharengeal cancer and in 2018 I had tongue cancer and had surgery at Mayo, Rochester. I live in California but I want to go there.

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@eve3lyn, you can also self refer. Here's how to get started: http://mayocl.in/1mtmR63

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Hi, I'm Pauly. I have a fractured jaw for radiation in 2021. I don't see anything posted here for quite a few months. Is this still active?

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@pauley

Hi, I'm Pauly. I have a fractured jaw for radiation in 2021. I don't see anything posted here for quite a few months. Is this still active?

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Hi @pauley Welcome to the head and neck cancer group. We are all very active except perhaps this specific discussion. If you search on Ameloblastoma there is currently a discussion concerning the surgery to replace a faulty mandible.
Usually with osteoradionecrosis, when it comes to the jaw or mandible as I understand it, the bone dissolves which can lead to an easy fracture. Of course once that happens, it likely will never heal and should be replaced as soon as possible.
What is your status now? Are you getting help and what kind of help?

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@hrhwilliam

Hi @pauley Welcome to the head and neck cancer group. We are all very active except perhaps this specific discussion. If you search on Ameloblastoma there is currently a discussion concerning the surgery to replace a faulty mandible.
Usually with osteoradionecrosis, when it comes to the jaw or mandible as I understand it, the bone dissolves which can lead to an easy fracture. Of course once that happens, it likely will never heal and should be replaced as soon as possible.
What is your status now? Are you getting help and what kind of help?

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Thanks for your reply. I am getting help. I have a 3rd consultation on July 3rd at VCU to help decide if a plate or a bone rebuild will be my choice. Thank you and I will look for Ameloblastoma boards. God Bless

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