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DiscussionSupporting Glioblastoma Patient: What can I expect as the caregiver?
Caregivers | Last Active: Nov 16 3:23pm | Replies (24)Comment receiving replies
Replies to "Hello. I know I am late to the comment but I am a caregiver for my..."
Hello,
Do you know any agencies that could help watch my partner so I can take some time off?
Thank you.
I could use some advice with my niece she just turned 26 yesterday and we are looking at long term care now and is struggling
@justasmalltowngirl hello I am new to this group. My mom has glioblastoma grade 4 and was diagnosed last year dec. had surgery on nov.1 and then we got the pathology report back on dec.1.
She did radiation 3 weeks, had c-diff she had a really hard time. She did 6 months of chemo.
They told us the tumor didn’t comeback 2 weeks later we met with the surgeon and she had another surgery . She was
Monday surgery day, Tuesday icu and Wednesday home. Crazy right?
She ended back in the hospital 2 week after that due to a fall and hurt her head. They did about 4 ct scans. They didn’t say much but a little inflammation. Now all she does is sleeps all the time and is really confused!!!! I have been trying to get her to urgent care to get her 2 staples in head removed but she has no memory. Is this normal? Do you think she will return to normal or is this the new norm?? Nobody is telling me nothing.. is she declining? I don’t know if you can answer me but at least give me some info if you can that is… thank you so much for reading this long msg! Amber
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Thank you for your post. I am the caregiver for my son. We are working with three hospitals and the staffs have been great. However, we are going to need funding resources soon. They have not been able to provide and suggestions so far. I’m trying to research between treatments etc. I would appreciate any suggestions on organizations etc to reach out to.
Thank you