So sorry for everything you've gone through! I am 65 and was diagnosed this year. I have lost 14 pounds and was already skinny. I can't seem to gain any weight. At first people thought I was anorexic which was really annoying. I have a good appetite and eat healthy foods. I had a bad reaction to Ensure a while back and don't want to take that. I was prescribed Budesonide the first time but 9 mg was too much. After the last flare-up they said take 6 mg. and that's doing the trick except for constipation off and on - just not everything in there. I've been reading on this forum about how people go off Budesonide and get a flare up so I'm really concerned that will happen to me too. I do drink kefir everyday which I think is really helpful, but pretty depressed overall.