Meningioma invading the superior sagittal venous sinus: Next steps?

Posted by Diana @dg12, May 13 2:39pm

Hello,
I have a meningioma that is invading the superior sagittal venous sinus, unfortunately is been there since 2019, but was able to be seen on 2024 after a ct scan due to I have had a brain surgery for a brain aneurysm that was clip on 2004, so I have to follow-up. Anyone with a similar situation, to be honest I am a bit worry, going to see a neurosurgeon after my MRI to see what the next steps are

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Agree with @tbgreif625 try to relax a bit. Do whatever you need to do until you can speak to a neurosurgeon. From what I can gather there are a few lesions in the brain that can cause haemorrhage but I think it's rare for meningioma. That could be what is causing your headaches if you have had a small bleed. Its more likely that the bleed will be the cause of the headaches, light and noise sensitivity than the meningioma. Incidentally found meningiomas are rarely the cause of headaches. I hope this gives you a bit of reassurance before you see the neurosurgeon. Please let us all know how you get on.

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Hello to all,
I was admitted to the hospital this past Tuesday. I was discharged on Thursday. My subdural hemorrhage is small, and they said that my headache is from the Hemorrhage that has occurred and appears to be from the blood slightly shifting my brain to one side of my head. The hemorrhage is under control and will eventually be absorbed back into my body. It was a bit hectic being there with all the tests, neurologist, and neurosurgeons, who came to see me, but luckily, I was stable. Just with the headache, but thank goodness I am home taking new meds and hoping that those with help me with the headache. I have a CT Scan next Friday, and the following week, after that, the follow-up appointment with the Neurosurgeon and Neurologist. I believe I have a guardian angel watching after me, and I am very thankful that I am ok and alive. On Memorial weekend, I play low, staying home and relaxing a lot, which helps me a lot as well.
Thank you all for your encouragement and advice, I appreciate it a lot. I am very thankful as well that I found this wonderful forum/group
Thank you 🙂

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Diana: Is the subdural hemorrhage from the meningioma? Or an entirely separate issue?

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@mkoch

Diana: Is the subdural hemorrhage from the meningioma? Or an entirely separate issue?

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@mkoch ,No doctors were able to answer that, some said most likely not but other straight said we don't know. So to be honest I am clueless. All of this question and more I have when I have the appointment with the Neuro. They said that the blood thinees made the hemorrhage visible, I started taking that on the May 17 but I have had the headache since the second week of April, so I believe I had that hemorrhage since then ans the blood thinner made it visible on the MRI in a way I am thankful otherwise don't know if that hemorrhage would of been found on time. This is me thinking out loud.
They only thing I know for sure is that a guardian angel is watching after me.
I just want to catch a break ans be with zero headache 😪
I had a brain surgery on 2004 for an Aneurysm that it was clipped

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Diana: Wow-20 years ago you had an aneurysm clipped. I had one "coiled" before Christmas 2024, 6 months ago. I wonder if you were having an aneurysm dealt with today if they would coil instead. I understand it is less invasive (not a craniotomy) so it's the preferred first line of defense. This Mayo Forum has a lot of post regarding meningiomas but not a lot regarding aneurysms. I am now supposed to, at 6 months post-procedure, have the procedure where they thread a catheter through the artery in my wrist all the way up into my brain to LOOK at the coiled aneurysm and make sure the coils are in place. I am resisting this a little bit as I would think they could see it well enough with an MRA scan. My reticence is that there is always a chance of a stroke during this procedure. And then there's the on-going surveillance of my 2 remaining meningiomas...

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@mkoch

Diana: Wow-20 years ago you had an aneurysm clipped. I had one "coiled" before Christmas 2024, 6 months ago. I wonder if you were having an aneurysm dealt with today if they would coil instead. I understand it is less invasive (not a craniotomy) so it's the preferred first line of defense. This Mayo Forum has a lot of post regarding meningiomas but not a lot regarding aneurysms. I am now supposed to, at 6 months post-procedure, have the procedure where they thread a catheter through the artery in my wrist all the way up into my brain to LOOK at the coiled aneurysm and make sure the coils are in place. I am resisting this a little bit as I would think they could see it well enough with an MRA scan. My reticence is that there is always a chance of a stroke during this procedure. And then there's the on-going surveillance of my 2 remaining meningiomas...

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@mkoch, when I had my brain surgery in 2004 I believe that they only choice at the time was to be clipped, I know they gave me a answer why it can not be coiled, but no matter what I am thankful that they were able to do something. This is my second time where I have had a constant headache for a while and no medication has helped with the pain and happen to find out I have something major on my head, 2004 Brain Aneurysm and 2025 a Subdural Hemorrhage, so I have to be more aware of my headaches, as well I have to share and remind my doctor that unfortunately, if I am in any pain strong or not my BP will be as normal as it can be, and that cause some disbelief with the nurses and doctors, but that is something that I have to deal with it for the rest of my life. I still have a headache and does not want to go away, going to see my doctor this coming Thursday and hoping and praying that I get some answers.
Agree on the Aneurysm forum, and we need more information and support on that. I have never had a procedure where the put the catheter through the wrist, mine had always been through the groin area and so far everything looks good and normal, I usually have a Cerebral Angiogram every 3 or 5 years give or take, but now having a meningioma do not know what are the next steps, the good news so far is that my hemorrhage is shrinking which is good, but still is pretty scary knowing that I have a brain aneurism clipped, a meningioma and a hemorrhage, so I guess the best thing I can do is take it one say at the time and pray that I can get rid of this headache.
Thank you for all support

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@dg12

@mkoch, when I had my brain surgery in 2004 I believe that they only choice at the time was to be clipped, I know they gave me a answer why it can not be coiled, but no matter what I am thankful that they were able to do something. This is my second time where I have had a constant headache for a while and no medication has helped with the pain and happen to find out I have something major on my head, 2004 Brain Aneurysm and 2025 a Subdural Hemorrhage, so I have to be more aware of my headaches, as well I have to share and remind my doctor that unfortunately, if I am in any pain strong or not my BP will be as normal as it can be, and that cause some disbelief with the nurses and doctors, but that is something that I have to deal with it for the rest of my life. I still have a headache and does not want to go away, going to see my doctor this coming Thursday and hoping and praying that I get some answers.
Agree on the Aneurysm forum, and we need more information and support on that. I have never had a procedure where the put the catheter through the wrist, mine had always been through the groin area and so far everything looks good and normal, I usually have a Cerebral Angiogram every 3 or 5 years give or take, but now having a meningioma do not know what are the next steps, the good news so far is that my hemorrhage is shrinking which is good, but still is pretty scary knowing that I have a brain aneurism clipped, a meningioma and a hemorrhage, so I guess the best thing I can do is take it one say at the time and pray that I can get rid of this headache.
Thank you for all support

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With regard to the meningioma, I think the monitoring is an MRI, or, at least, that is what I have once a year to monitor the 2 I still have, and now, per Jason's post, my understanding is that the neuro doc is also monitoring for possible regrowth of the meningioma I had removed. I don't have an issue with the MRI. At least there is no radiation. I just have to make sure to drink a lot of water after the contrast agent is injected into my veins as it is hard on one's kidneys. I have had 2 cerebral angiograms. The first, to look at the 7 mm aneurysm, and the second, to go back again and insert 4 coils into it. (This time under a general for about 3 1/2 hours.) To my dismay, the neurosurgeon now wants another cerebral angiogram at the 6 month post-coiling mark to check it again. If any of the coils have compacted, then I might need to undergo another coiling procedure to add a few more coils. I have tried to compromise with aforementioned neuro doc asking to just have an MRA with contrast. I really don't like all the radiation with the cerebral angiogram. Each time I've had it I've lost a noticeable amount of hair afterword. But the neurosurgeon said, "no," one more cerebral angiogram and then after that he'll let me have a yearly MRA. Oh, and by the way, snaking the catheter through the artery in my wrist and into my brain is preferred because it's easier to compress and stop the bleeding with this special wrist cuff as opposed to stopping bleeding in one's groin. The whole coiling procedure was pretty easy. But, I know in some cases it's not possible. Best of luck to both of us navigating all this unwanted real estate in our brains.

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