Greg and Toni,
I can so relate to your journey. My wife was diagnosed with GBM in Oct 2024, had surgery that removed about 80% of tumor, underwent the 6 wks of radiation and chemo. She is just about to finish up her 6th month of 5 day chemo every 28 days. She is also receiving Avastin infusions every 2 weeks. She is really doing incredibly well considering. She tolerates her treatments well, and can mostly care for herself. But like you guys noted, the cognitive struggles are real. She also deals with a lot of fatigue and tires out quickly.
I do my best to care for her and try to understand what she is going through. To be completely transparent, I often get impatient with her struggles, and then feel guilty later. I hate what this cancer/treatments has done to her, and to us. She retired from 40 yrs of teaching in June of 2024, and we had grand plans to enjoy retirement together. Cancer has robbed us of that time. We do our best to stay active, but it isn't always easy.
So we continue to stay the course. Her last scan looked good, with no signs of progression. We don't know what the plan of action will be once she completes these days of chemo. We are scheduled for a scan in the beginning of July, so I guess we will wait and see.
She has a tremendous faith from which she draws her strength. I should have a great faith as well, but I can't shake the bitterness and fear.
Thanks for taking the time to read this. Blessings!