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Started Repatha - Side Effects

Heart & Blood Health | Last Active: 1 day ago | Replies (277)
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@llynch17056

What recommendations does the Mayo Clinic Cardiology’s Statin Intolerance Clinic make. I cannot take statins, any kind at any dose, or Repatha. I put my body through hell trying and retrying these drugs. The recoveries were slow. I still have remarkable low back pain from Repatha over three months after stopping it. I am thinking there is permanent damage. I exercise, keep a normal weight, eat organic healthy food and don’t smoke or drink. Would the Mayo Clinic Cardiology’s Statin Intolerance Clinic have anything for me? I tried red yeast rice which gave me “statin like” side effects. I currently take Beta Sitosterol. I left my cardiologist when he told me “I have nothing for you if you cannot take statins or Repatha.” LDL 184, LPa 168, HDL 84

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Replies to "What recommendations does the Mayo Clinic Cardiology’s Statin Intolerance Clinic make. I cannot take statins, any..."
Janell, Volunteer Mentor | @jlharsh | Jun 9 8:31pm

I feel your pain @llynch17056. You have to be so frustrated. It feels like a “spray and pray” experiment and sounds like you are not recovering well. I am sorry. You are doing the absolute best thing for your body by staying active and eating healthy, something there is no downside to. Kudos!

My perspective of Mayo is that they first figure out how an individual’s unique body functions and then matches specific drugs to what is needed. They take side effects seriously and do what is needed to address them. I’m not sure that really answers your question, so I found a link that provides a summary of their approach. I am confident they could help you (and your nagging side effects).

- Mayo’s Statin Intolerance Clinic here: https://www.mayoclinic.org/departments-centers/statin-intolerance-service/overview/ovc-20442137
- Make an appointment: http://mayocl.in/1mtmR63

You mention leaving your cardiologist. Are you working with a different doctor now? You mention lower back pain from Repatha. What does it feel like?

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missey | @missey | 6 days ago

I would get occasional lower back ache pain after my repatha injection. I don’t know if this would help you, but I would take a Doan’s back ache pill and it was gone in 20 minutes.

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