1. < Autoimmune Diseases

CIDP related to Covid?

Posted by bearmom @bearmom, Jun 5 5:36pm

I was diagnosed with CIDP in 2022. I started developing symptoms about 6 weeks after I had a mild case of COVID. Some of my physicians believe there is a link there while others do not. Has anyone else been told they may have developed CIDP due to COVID?

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artemis1886 | @artemis1886 | Jun 9 6:39am
In reply to @hockey65 "How were you diagnosed? What tests did they do? I am almost positive I have this..." + (show)
@hockey65

How were you diagnosed? What tests did they do? I am almost positive I have this or GBS after Vac . How will they treat you?

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CIDP is diagnosed with a lumbar puncture into the spinal cord. They remove spinal fluid and send it off for testing

REPLY
itsmeagain | @itsmeagain | Jun 9 7:54am
In reply to @bearmom "Does your doctor think it’s related to the vaccine? What brand of IVIG do you get..." + (show)
@bearmom

Does your doctor think it’s related to the vaccine? What brand of IVIG do you get and do you get it every other week?

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@itsmeagain
No only 2 days a month.
I think it’s Privigen.
I’ll be speaking with him Wednesday and bring up the vaccine issue. I think I mentioned it before but got no commitment.
I’ll let you know.

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1 reply
bearmom | @bearmom | Jun 9 8:53am
In reply to @itsmeagain "@itsmeagain No only 2 days a month. I think it’s Privigen. I’ll be speaking with him..." + (show)
@itsmeagain

@itsmeagain
No only 2 days a month.
I think it’s Privigen.
I’ll be speaking with him Wednesday and bring up the vaccine issue. I think I mentioned it before but got no commitment.
I’ll let you know.

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I was just curious as to the timing of your 2 doses each month

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1 reply
itsmeagain | @itsmeagain | Jun 9 1:57pm
In reply to @bearmom "I was just curious as to the timing of your 2 doses each month" + (show)
@bearmom

I was just curious as to the timing of your 2 doses each month

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@itsmeagain
It’s 2 consecutive days.

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