Hi this is Greg and Toni (his girlfriend) - The first week was really hard. Not only for Greg (has stage four glioblastoma) but for me as well. He never really got weaker. He was more so impulsive when walking. He told me alot he was "lost". He had surgery last month on the 12th and finally he started acting like his old self. He still has aphagia but isn't "lost" anymore. TIPS: Get a cold cap off amazon - 20 dollar grey one. Greg tried to not use pain meds at all - he got discharged the second day after surgery. He was severely confused. and i was terrified he was going to fall or accidently over dose by taking too many medications. - We had him sleep upstairs. So when I was at work when he was at home - He wouldn't have to be going up or down stairs when I wasn't there. He is very strong and 48 years old. Going up the stairs the first time after surgery he was shocked how much it made him feel dizzy and*
+ legs felt weak. Steroids also made greg super HANGRY - i am so glad he got off steroids .. He would get so aggitated on them. That was another thing about gregs personality that changed - he gets aggitated or what it seems like he is upset . I bought him multiple journals and also like "About me" journals from target and amazon. So if he were to lose memory he would always be able too look back and read what he wrote in hopes hed later regain memory.. best idea ever. he does have short term memory loss. -its gotten a little better but i'm thinking hes going to have the short term memory loss forever. He also got pretty sad he isnt able to work anymore. And we had alot of help with having close family facetime him alot while i was at work .It does take him awhile to process what i say to him though still. Sorry I am rambling on about a bunch of different things. But these are all things I wish some one would of told me. I am so happy I found this website. I wish I would of found this sooner. It's such a scary situation and I hope you find a couple things I said helpful !