Non Operable Glioblastoma 4: Tips for chemotherapy and radiotherapy?

sendiing good thoughts to both you and your husband. I think I just read that May is Veterans' recognition month or something to that effect. yes, he certainly deserves the best care possible. all my best to you both. thanks for sharing his story/your story

Thanks for the reply. We (she) have now completed a week of treatment and fortunately no major issues so far. I’m so frustrated when I hear stories from people who feel like they have not had good experiences with the medical community. As a doctor myself, perhaps I am treated differently but our oncologists have both been very detailed about what to expect and made sure we were referred to a palliative care team to assess our needs. Although my insurance wouldn’t cover the University, it has paid almost everything else we have needed. I’m not sure if my wife will be a long term survivor but we are definitely trying to spend quality time. She is no longer the woman I married because this tumor has knocked out the best parts of her personality and that is heartbreaking. One way or the other we will try to make the time she has count.

My 47 yr old son had a Glioblastomas tumor. He had a seizure which after going to the hospital found that he had the tumor. He had surgery to remove it then radiation and chemo about a month later then a new mri which looked good. Then after a stronger dose of chemo for a week. Wait another month for another mri with no changes thank God! Then he was feeling great and climbed a wet later and fell and broke his knee..he is dealing with that now..which is more painful. 4 months now and mri is not changed! Let's pray that this continues!

The type of tumor and proper staging is key. Mentholated tumors are very sensitive to TMZ and fractionated radiation. The optune device can suppress growth in the white matter. Best to see a neuro-oncologist for treatment options. So far there are no immunotherapy options I have found. Do not ignore clinical trials.