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DiscussionAny one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: Aug 27 7:50pm | Replies (215)Comment receiving replies
Replies to "Love your positive and focused mindset - makes a great deal of sense to be seeking..."
Hi there! I have MEN1 too and the same tumors. You are not alone! Please reach out to me anytime. I am heading up a new neuroendocrine support group at The Seena Magowitz Foundation. Please google when you have time. My story is on their website.
My name is Theresa Valentic.
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Hello @weavepj and welcome to Connect. It sounds like you have had some unusual NET findings with numerous surgeries.
How long ago were these NETs discovered, and how are you feeling now?