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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: 7 hours ago | Replies (260)

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@tomschwerdt

Also: Could you share how your ameloblastoma was found, what symptoms you currently have and what analysis or treatment you've had so far. Do you have a pathology report? X-rays? Was the tumor largely removed during the biopsy? How large is the tumor?

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Replies to "Also: Could you share how your ameloblastoma was found, what symptoms you currently have and what..."

@tomschwerdt. I felt very soft tissue behind my upper right molar and in my heart knew something was terribly wrong. I asked my dentist about it a year ago. Showed nothing on an X-ray. I asked again a year later when the tissue become very soft. He said a cyst and referred me to an oral surgeon. Meanwhile there was sinus blockage, so an ENT actually felt the soft tissue in my gum at my request and asked that I see a maxillofacial surgeon who would go into the Sinus surgery with him. That Maxillofacial surgeon drained the cyst first to see what he'd be dealing with during sinus surgery, and from that we discovered Ameloblastoma. Now no sinus surgery, as I have this bigger issue to deal with. Since draining the Amelo. the next CT scan showed the sinuses opened some. They expect to take two or three teeth and if so say I need the fibular transplant. I have a good ENT surgeon but he did admit never dealing with an Aemloblastoma in the maxilla (I know rarer than others), but he is a tumor specialist for ENT. I trust this doctor and his vascular partner in surgery, but in my heart want to go to Mayo for another opinion. I have to get to my documents to look up tumor size, and will get back to you. Ive had 3 CT scans, a PET scan, 4 MRIs. Dr said the tumor has likely been there for 10 yrs.