← Return to Diagnosed with Ameloblastoma

Discussion
caw avatar

Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: Sep 10 7:47am | Replies (287)

Comment receiving replies
Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

The feeding tube is a bit annoying I agree, but nothing you can't handle. I wrapped the outside piece over my ear when showering or not in use. Plan for one hour meals and you will take ground up meds through the tube as well. I was 65 when I had this done. Piece of cake. Well, perhaps an entire cake.
For me I didn't like the CAM boot as it was clumsy and often banging into things.
You will have a tracheostomy which should be healing when you leave the hospital and you have to be careful taking a shower as to not get soap in there.
Dr.'s Arce and Ettinger were my team as well. You will never meet nicer surgeons.
My wife has reminded me she had to peal me off the ceiling a couple of times whilst dealing with the feeding tube. Likely so. But I had mine for three weeks and we live five hours from Mayo Clinic so lots of driving.

Jump to this post


Replies to "The feeding tube is a bit annoying I agree, but nothing you can't handle. I wrapped..."

This is all so much.. I am 65 as well. Tracheostomy? That's another layer. I better look that up! I live in NY so to have this surgery in Minnesota, I have to consider how I'll stay there for a few weeks to be local. I'm sure I can figure that out. You do remind me, though, that you are on the other side and now you can look back on it. I look forward to that.