Bullous Pemphigoid

I have this condition. Mine has made its home on the underside of my ileostomy skin barrier. It has been a real pain as it is difficult to stick to the skin with the blisters present. I use the Clobatosol on them and cover them with a bandaid. I stick the skin barrier over the bandaid and place another on top to hold it tight. They also appear inside my mouth which is very, very painful. I have had Purigo Nodgerlarous for 4 years and Bullous Pemphigoid for two years. Both of these diseases are pretty awful to deal with. The Purigo Nodgerlarous is directly affected by my Hypothyroidism. When it is not functioning correctly, the Purigo Nodgerlarous acts up.

Assuming you are under the care of a dermatologist who has made
the diagnosis they can offer various prescriptions and suggest topical creams
to apply.
You will need good wound care advice if their practice includes a wound care
nurse. Several medications have been implicated in the development of
Bullous pemphigoid so that should be reviewed in your history. If there are
no underlying health problems you may need a trial of prednisone.
Potent steroidal creams are useful in localized areas. Weeping broken skin
areas are often treated with soaking regimens at the onset. Hoping you have good access to a dermatologist.

Sorry for your difficulty. I've been dealing with Bullous for nearly 5 years. Just when it seems to respond to Medrol it strengthens. My dermatologist is considering infusions of an IVIG concoction, and I am willing to try almost anything.

My husband developed BP about a year ago after undergoing immunotherapy for melanoma. It’s been a daily challenge with blisters developing on various parts of his body, itching and discomfort. When blisters break and ooze (and sting!) special care to apply steroid cream and bandaid. His dermatologist is following him closely. Various steroid creams, course of doxycycline. Have not tried oral steroids (yet). There will be some improvement for awhile, then new blisters will form. So frustrating. He was told this may “burn itself out” in 5 years?? If this has happened for anyone out there, please let us know. In the meantime, sending out positive thoughts and prayers for all of you suffering with this.

Thanks--it is such frustrating disease. I have been dealing with it for nearly five years, using Medrol, doxy, creams. Early this year it appeared that it was disappearing--then it reappeared with a vengeance. Dermatologist is planning an infusion to hopefully make it disappear. I understand your frustration--at times the itching is maddening. I wish you the best.

I certainly hope the infusion helps you. What kind of infusion is it? Please let us know how it goes!