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Head & Neck Cancer | Last Active: 10 minutes ago | Replies (258)
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@hrhwilliam I can see what a great support you are to everyone on this forum, so thank you for your response. May lean into this group as I get closer to treatment. It's a lot, as you know! Part of a club we never asked to be in... I plan to reach out to Mayo Clinic, Dr. Arce. I only worry about the distance to get to my care team if there's any complications later, since I'm in NY. PS I am terrified of this feeding tube. To me that's the most frightening part now. Maybe because that was only just mentioned on my last visit.
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The feeding tube is a bit annoying I agree, but nothing you can't handle. I wrapped the outside piece over my ear when showering or not in use. Plan for one hour meals and you will take ground up meds through the tube as well. I was 65 when I had this done. Piece of cake. Well, perhaps an entire cake.
For me I didn't like the CAM boot as it was clumsy and often banging into things.
You will have a tracheostomy which should be healing when you leave the hospital and you have to be careful taking a shower as to not get soap in there.
Dr.'s Arce and Ettinger were my team as well. You will never meet nicer surgeons.
My wife has reminded me she had to peal me off the ceiling a couple of times whilst dealing with the feeding tube. Likely so. But I had mine for three weeks and we live five hours from Mayo Clinic so lots of driving.