Refrigerating Tymlos daily.. quick question

@stress101, Do you already have a kidney stone? If so, you probably shouldn't be on Tymlos. Let us know what your Dr says.

Yes I do. I don’t remember if she got that report. I left message on her portal yesterday per her request of how to contact her. I should hear back soon unless she’s out of town. I will let you know.

If you go on the Tymlos website, there is information for patients and a phone number to call for questions I believe.

Her reply was for me to stop the Tymlos for two weeks as I begin PT . She didn't reply on the kidney stone question, so I sent another message. She answered to have my Dr send her the test result I had done in January and said " It is not an absolute contraindication". So, as suggested, I am calling Tymlos as well. I will let you know what she says after she gets the test.

Thank you, I am going to call them.

@stress101, I answered too quickly about hardly any side effects with starting a half dose of Tymlos again. It took a few days, but now I am having dizziness and nausea. I should have gone back to 20 mcg and worked my way up. Please let us know about the kidney stone issue.

Well hate that happened to you. You may want to wait a few days to begin again to get it out of your system.
My kidney test was to be sent today to endocrinologist. Haven’t heard back and probably won’t now until next week.
I did call Radius and all help I got was what I could read on their brochure. Cannot advise or comment on back pain or kidney stone. Was told my physician would be the one making that decision. She asked when I began and I asked her if they are aware that people are needing to titrate to be able to tolerate it. Surprisingly, she said yes but they can only recommend the full dose but did add that would be through the physician in the titrating. In other words, we only make it and rest is up to our physicians and us. They are making so much money on this, they aren’t going to change anything until they have to or have competition is my opinion. My info I gave her was more for their data or the dosage questions wouldn’t have been asked in detail.
I’ll let you know when I hear from my endo and her suggestions. Hope you feel better soon.

Thanks, that's good advice. I'll try it. I'm wondering what the endocrinologist will recommend next week. I would like to get off these medications, but I am afraid of the options for locking in gains.