← Return to Essential Tremor

Discussion

Essential Tremor

Parkinson's Disease | Last Active: Jun 23 7:19am | Replies (27)

Comment receiving replies
@kateyes100

My boyfriend had essential tremors since he was in his early 20’s. It runs in his family. When he heard about this treatment (HIFU) he went to the neurologist who specialized in this procedure. He had the procedure done for his right hand 4 years ago. The results were amazing and he was thrilled Two years later, after it was approved that it would be covered by insurance, he had his left hand done. However, this time while the shakes were no longer there, he lost 80 percent of his ability to taste. He was told it would be temporary, but 2 years later, he still can’t taste. He heard this only happens to 15 percent of patients. He is going to go back to the doctor but we are pretty sure this effect is permanent. Having said this though, he no longer shakes which was so debilitating for him for so many years. Do your research and know the risks and make the decision if it’s right for you.

Jump to this post


Replies to "My boyfriend had essential tremors since he was in his early 20’s. It runs in his..."

Welcome to Mayo Clinic Connect, @kateyes100. Great to hear about your boyfriend losing the shakes in both of his hands. Really sorry to hear about the loss of 80 percent of his ability to taste. I sure hope it returns naturally or the doctor has a remedy for him.

I applaud your suggestion to do your research before a procedure.

What does your boyfriend say about the experience of eating now? Has this affected his interest in cooking, eating or going to restaurants?