Endometrial cancer: I'm so scared

Posted by sbryant @sbryant, Mar 16 7:23am

Hello my name is shelley. I will be 55 in June. I started HRT for menopause 18 months ago. After a year I started having spotting daily for 6 months. I went in for an ultrasound and they found a polyp. I went in for a hysteroscopy and DNC they found 2 or three polyps in my uterus and one on the cervix. Results came back the uterine polyps are endometrial carcinoma. The cervix is benign.
That was the first surgery I have ever had. It’s been two days since I got the call and I can’t stop crying. I am so scared. I am afraid to tell my kids. I expect a call from the oncologist this coming week.

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@naturegirl5

@sbryant Bravo!! Thank you for sharing your wonderful news. Your surgery sounds very much like my own. In a way, I was surprised that this surgery, which seems very complex to me, could be performed the same day. Like you I had laparoscopic robotic surgery and came home with 5 small incisions. My surgeon told me that even though my outside abdomen had just a few bandaids that my "inside" abdomen still had a lot of healing to do. I hope you find your surgical recovery as easy as I did.

I'm so heartened that our encouragement and sharing our own stories was helpful to you. I hope too that you will return and help and support others.

Do you have a follow-up scheduled yet?

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Yes it’s hard to remember all the of the inside healing we need to do. I have a 2 week post op Appointment on June 3rd.

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@sbryant

Yes it’s hard to remember all the of the inside healing we need to do. I have a 2 week post op Appointment on June 3rd.

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@sbryant That's very soon. It's great that you've already seen your pathology report. Will you let me know what happens at your appointment?

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@naturegirl5

@sbryant That's very soon. It's great that you've already seen your pathology report. Will you let me know what happens at your appointment?

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I will definitely be in touch. I’m assuming the appointment on June 3rd is to check the incisions and then I will have another 4 weeks from that to check the vaginal cuff.

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@sbryant

I will definitely be in touch. I’m assuming the appointment on June 3rd is to check the incisions and then I will have another 4 weeks from that to check the vaginal cuff.

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@sbryant Your follow-up is impressive. How are you feeling today? Any fatigue or pain?

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@naturegirl5

@sbryant Your follow-up is impressive. How are you feeling today? Any fatigue or pain?

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I don’t really feel pain and haven’t since the day after surgery. The incisions are sore that’s it. I’m bloated and it feels a bit strange walking around like I need to hold my abdomen. I have napped for a bit everyday but otherwise feel pretty good. It’s so bazar considering they removed so many parts.

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Phew!!
I underwent a total laparoscopic robotic hysterectomy on May 19. I was super surprised how well I felt afterwards. The first few days were pretty uncomfortable don’t get me wrong but I quickly started to feel better. I had no pain as far as where they removed my uterus, cervix, fallopian tubes, ovaries, and lymph nodes. 3 out of five incicions were mildly painful the other two were and are pretty sore. If I can say anything to someone just diagnosed it’s that hearing you have cancer is the absolute worst most devastating part. The doctors and nurses I had are the most compassionate, kind, reassuring blessing through all of it. I have never dealt with any surgery’s before this. So that was also scary. My belly band is my new best friend. And I am still adjusting to my five new scars added to my stretch mark covered abdomen. I am so thankful all of you your support your words of encouragement, and your positive attitudes. I hope somewhere along the way I can be that light for someone you all have been for me. I am happy to report all labs came back clean including the genetic testing my doctor routinely does with a hysterectomy. Science is amazing !
Thank you all again

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@sbryant Wow, this is such good news. I agree with you. Hearing the diagnosis with cancer in it is THE worst part of the whole journey. It was for me, anyway. Once there were plans in place and I arrived for my hysterectomy surgery all of my nurses and doctors were compassionate, caring, listened to me if I had questions and took very good care of me. This made the whole surgery journey less stressful because I felt I was in the care of angels.

Agreed. Science is amazing and so many of us here are the beneficiaries of the brilliant people who did the work so that we are able to survive and thrive.

Oh, yes. Those little wounds on the abdomen. Mine have been there for 5 1/2 years and are barely noticeable.

Have you seen your oncologist since your surgery? What is the plan going forward meaning how often will you return for your cancer surveillance check-ups?

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I will go back every 6 months for a year then yearly

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@sbryant

Sorry to hear? Can I ask what is figs?

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I am to have a total hysterectomy and removal of both ovaries in about a week. I have never had surgery before & am freaking out! The pap test showed no sign of cancer on the cervix but since there's cancer in my family they are removing it all as a precaution. Won't know until after if it's cancer & if so, just have to hope none is left behind or has gotten to the lymph nodes. Was it hard going into menopause completely while recovering from surgery as well? Was you sex life affected & how much? Did you have any infection or complications? I'm not sure about any of this.

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@sbryant

Phew!!
I underwent a total laparoscopic robotic hysterectomy on May 19. I was super surprised how well I felt afterwards. The first few days were pretty uncomfortable don’t get me wrong but I quickly started to feel better. I had no pain as far as where they removed my uterus, cervix, fallopian tubes, ovaries, and lymph nodes. 3 out of five incicions were mildly painful the other two were and are pretty sore. If I can say anything to someone just diagnosed it’s that hearing you have cancer is the absolute worst most devastating part. The doctors and nurses I had are the most compassionate, kind, reassuring blessing through all of it. I have never dealt with any surgery’s before this. So that was also scary. My belly band is my new best friend. And I am still adjusting to my five new scars added to my stretch mark covered abdomen. I am so thankful all of you your support your words of encouragement, and your positive attitudes. I hope somewhere along the way I can be that light for someone you all have been for me. I am happy to report all labs came back clean including the genetic testing my doctor routinely does with a hysterectomy. Science is amazing !
Thank you all again

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I will be having the same procedure in about a week. I too have never had surgery before or put under anesthesia at all so I was freaking out big time but your posts about your experience has helped to calm my nerves a bit...so thank you. I needed someone to tell me its gonna be ok.

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