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Anyone have chronic lymphocytic leukemia (CLL)?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (142)
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Profile picture for nana120 @nana120

Lori, this is actually happing to my son who has CLL, also. The doctor watching hemoglobin getting lower and almost sent him to the OR for removal of the spleen until his son, an endocrinology surgeon, halted it! It is currently being watched. I suppose I passed the CLL to him 😩!

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Replies to "Lori, this is actually happing to my son who has CLL, also. The doctor watching hemoglobin..."
Lori, Volunteer Mentor | @loribmt | Jun 6 8:19am

Good morning, @nana120. As a blood cancer patient myself and as a mother, I worry about the same thing you are…that we could pass this along to our children. I had AML, which I learned is not a directly inherited blood cancer, nor is CLL. While some genetic mutations can be identified or associated with blood cancers they’re not directly inherited in a straightforward manner. Most cases are random…with genetic mutations that we acquire with age. Le sigh…

Since your son’s splenectomy was halted, is he on any medication to reduce the swelling of his spleen?

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