← Return to Diagnosed: MGUS

Discussion
sandramgus avatar

Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: Aug 10 10:24am | Replies (136)

Comment receiving replies
Profile picture for maddogstormy @maddogstormy

Hi again, so I have the results from my recent labs and while numbers continue to increase or decrease in the wrong direction I am still Smoldering. I am currently waiting for a clinical trial to begin at Dana Farber for a bispecific treatment. I have continued to educate myself and have found this thread to be really helpful and the other threads that folks have here on Mayo connect. I now know a couple of people who are in treatment with very short notice, and have heard other people talk about receiving an active Multiple Myeloma diagnosis out of the blue and I am reminding myself that my situation is very different, I have this time now to pay attention to, I am not active, I am not in treatment, I am closely monitored, by skilled doctors, and practitioners. And if things change I will be prepared.

Jump to this post


Replies to "Hi again, so I have the results from my recent labs and while numbers continue to..."

@maddogstormy Good attitude! Each of us has our unique journey. Yes, there might be similarities. It is good to be able to hear what others experience, and it helps us to understand our own situation.

Good luck on getting in to the clinical trial at Dana Farber.
Ginger

I understand what you are going through. It's so helpful to me reading your comments while waiting to see if the results are getting better or worse. Thank you sincerely for your post.